Ms Anna Jones
Telephone:+44 (0)29 2091 7769
Fax:+44 (0)29 2091 7744
Location:Room 610, 6th Floor, EastGate House, 35-43 Newport Road, Cardiff CF24 0AB
Home Mechanical Ventilation (HMV): A critical exploration of the Quality of Life of Adult Patients and their Family
With an increase in health care technology and evidence based practice and treatment, it is possible to provide home mechanical ventilation (HMV) for those patients with disorders and diseases that require permanent and intensive ventilatory intervention.
The purpose of this study is to critically explore and gain a greater understanding of perceived quality of life of invasively HMV patients, and their significant other/ family in their home environment.
Reasons for patients requiring HMV are myriad; the Eurovent study listed conditions as follows: one third suffered from neurological conditions; one third had parenchymal lung disease of which the majority of patients had chronic obstructive pulmonary disease (COPD); and the final third included those patients with chest wall conditions. This study will focus on the quality of life of invasively ventilated patients and their families.
Quality of life as a concept does not have a definitive definition, and is an amalgamation of other concepts such as well-being, satisfaction and happiness, health-related quality of life and health/ functional status.
A mixed methods design will be used, with a primarily qualitative strand to explore the perception of quality of life of HMV patients and their significant other/ family. Data will be collected using SEIQoL-DW (Schedule for the Evaluation of Individual Quality of Life (SEIQOL): a Direct Weighting procedure for Quality of Life Domains (SEIQoL-DW)(O'Boyle, 1993a) which will provide the focus for semi-structured interviews. The data will be analysed using critical discourse analysis (CDA). Non-probability, purposive sampling will be used with a sample size of a maximum of 24 participants.