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Prof Jane Hopkinson 

Career Profile 

Jane Hopkinson is a cancer, palliative and end of life care researcher and lead for the Emotional, Supportive and Palliative Care Research Group. She trained as a nurse at The Middlesex Hospital London, qualifying in 1984 and then worked clinically in the fields of rehabilitation, cancer and palliative care prior to becoming a full-time researcher in 2001. From 2002-2011, she led the Macmillan Weight and Eating Studies (MWES), University of Southampton; a series of studies concerned with improving health outcomes for cancer patients living with involuntary weight loss and poor appetite.

Jane’s research training is broad. Her PhD, concerned with how nurses cope with caring for dying people, was informed by hermeneutic phenomenology. More recently, her Post Doctoral Fellowship work has enabled the development of expertise in clinical trial design and quantitative data analysis. It included the design and delivery of a Phase ll exploratory trial of a psycho-educational intervention to help patients and their family members cope with eating difficulties caused by advanced cancer. This broad methodological and methods base has enabled her to design, deliver and supervise quantitative, qualitative and mixed methods research. She has a particular interest in the methodology and methods of Phase I-II trials of psycho-social interventions and expertise in the design and delivery of palliative care research.The focus of Jane’s research is now the development and evaluation of innovative approaches to symptom management. The emphasis is on improving patient reported health outcomes not only for patients, but also for family carers, when affected by life-limiting conditions.

Awards and Prizes

Macmillan Post Doctoral Fellowship (2008-2011), University of Southampton, UK

Travel award (2008), University of Alberta, Canada

PhD studentship (1998-2000), University of Manchester, UK

Membership and External Activity

Committees (current)

Sept 11 – present: Visiting Research Fellow, University of Southampton

Dec 11 - present: Cardiff and Vale Health Board Nutrition and Catering Steering Group

Sept 11 - present: SONMS RRESC and REC member.

Feb 2013 – present: Associate member of the National Cancer Research Institute (NCRI) Palliative Care Clinical Studies Rehabilitation Sub-group

Aug 2012 – present: Independent Member Velindre NHS Trust Board (Cardiff University Rep.)

Chair: Research Risk Review Committee

Chair: Genetically Modified Products Safety Committee

Independent member: Research and Development Committee

Independent member: Charitable Funds Committee

Independent member: Investment and Remuneration Committee

Independent member: Trust Board

Membership of academic societies/groups

July 2011 - present: Treasurer of the Palliative Care Research Society (PCRS)

Sept 2008 – present: Member of the Cancer Experiences Collaborative (CECO) Methodology Group

Dec 2007 – present: Member of an international collaboration of researchers investigating psychosocial support for people living with cancer cachexia syndrome

Jun 2007 – present: Member of the International Palliative and Family Carer Research Collaboration. Chair: Peter Hudson, Director of the Centre for Palliative Care (St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia)

Mar 2012 – present: Lead for the Emotional, supportive and palliative care research group, School of Nursing and Midwifery, Cardiff University

Oct 2012 – present: Member of the European School of Oncology (ESO) Early Recognition of Malnutriton and Cachexia Taskforce