Dr Heather Strange
Research Associate
- strangehr1@cardiff.ac.uk
- 1st floor, Neuadd Meirionnydd, Ysbyty Athrofaol Cymru, Parc y Mynydd Bychan, Caerdydd, CF14 4YS
- Ar gael fel goruchwyliwr ôl-raddedig
Trosolwg
I am a qualitative researcher at Cardiff University's Centre for Trials Research (CTR) and I am currently working on both the ORION study (translating foundational research on the ORganIsing work Of Nurses) and PUMA (Paediatric early warning system - Utilisation and Mortality Avoidance).
My work is located within and across the fields of medical sociology, science and technology studies, social and political theory and bio/medical ethics. I completed my PhD (2015) at Cardiff School of Social Sciences - an empirical study of the emergence and translation of a new prenatal testing technology (non-invasive prenatal diagnosis/testing - NIPD or NIPT). Previous to this, I contributed to a wide range of qualitative and bioethical research projects at Cesagen, the ESRC funded Centre for the Economic and Social Aspects of Genomics. Crossing disciplinary boundaries, my work engages with a broad range of academic and political debates including: the social and cultural impact of prenatal testing, the ethics of sex selection, the application of new biometric technologies, the standardisation of ethics in biobanking and population health, the dignified care of older people, the care of persons with dementia, and the community-based use of online social media.
PUMA: see http://bit.ly/2q8YQqM and pumastudy.com for for further information
ORION: (study information and website forthcoming)
Bywgraffiad
Education and qualifications
- PhD (Social Sciences), Cardiff University, 2016
- MA (Ethics and Social Philosophy), Cardiff University, 2007
- BA Hons, first class (Philosophy), Cardiff University, 2004
Career overview
- 2016 - present: Research Associate, Centre for Trials Research (CTR) / South East Wales Trials Unit (SEWTU), Cardiff University
- 2014 - 2016: Research Support, Specialist Unit for Research Evidence (Sure), Cardiff University
- 2011 - 2015: PhD student, School of Social Sciences, Cardiff University
- 2008 - 2011: Research Assistant, ESRC Centre for the Economic and Social Aspects of Genomics (Cesagen), Cardiff University
Anrhydeddau a Dyfarniadau
- National Institute for Social Care and Health Research (NISCHR), Health Studentship Award (2011), Welsh Government.
- DM Phillips Tylerstown Philosophy Prize (2006-07), Cardiff School of English, Communication and Philosophy, Philosophy Board of Studies
Smaller grant funders (for travel and research dissemination) include: the British Sociological Association, Cesagen, the Foundation for the Sociology of Health and Illness, the Health Technology and Society Research Group, the European Society for Human Genetics, the Federal Ministry of Education and Research (Germany) and the Economic and Social Research Council.
Aelodaethau proffesiynol
The British Sociological Association (BSA), date of registration 23/05/2012.
Safleoedd academaidd blaenorol
- 2014 - 2016: Research Support, Specialist Unit for Research Evidence (Sure), Cardiff University
- 2012 - 2014: Qualitative field researcher, Cardiff University School of Social Sciences (Forgotten Abergavenny and Care Home Organisations Implementing Cultures of Excellence/CHOICE, projects)
- 2011 - 2015: PhD student, School of Social Sciences, Cardiff University
- 2008 - 2011: Research Assistant, ESRC Centre for the Economic and Social Aspects of Genomics (Cesagen), Cardiff University
Ymrwymiadau siarad cyhoeddus
- Non Invasive Prenatal Diagnosis: The Emergence and Translation of a New Prenatal Testing Technology. Cardiff University Institute of Medical Genetics seminar series, University Hospital of Wales, 18th February 2016, Cardiff University.
- NIPT: the Emergence and Translation of a New Prenatal Testing Technology. International Winter School /
Internationale BMBF-Klausurwoche: “The Fetus as a Patient – a Sustainable Approach to Clinical Interactions in the
Field of New Prenatal Medicine”. November 23-27, 2015 in Kasteel Bloemendal, Vaals (Netherlands). - Non invasive prenatal diagnosis (NIPD) and testing (NIPT): encounters with a revolutionary reproductive technology.
BSA Medical Sociology Group Annual Conference 2015 Wednesday 9 - Friday 11 September 2015, University of
York. - "Patient and Professional Experiences with Non-Invasive Prenatal Diagnosis (NIPD) and Testing (NIPT): Social and
Ethical Issues Raised". International Conference on Prenatal Diagnosis and Therapy, Washington, DC, USA, 12-15
July 2015 (poster presentation). - ‘From NIPD to NIPT: Biopolitical Implications of an Emerging Reproductive Technology’. Inaugural ELSI 2.0
conference: Translational Research and Emerging Technologies. HeLEX, Oxford, 23rd – 25th June 2015. - ‘Non-invasive prenatal testing (NIPT): Panacea or Pandora’s box?’. Innermost Learning Babywatch Symposium, The
Vale Hotel, Hensol, Cardiff. May 19th 2015. - ‘Patients voices and the sociological perspective on non-invasive prenatal diagnosis’. Workshop on Interdisciplinary
approaches to Regulating Innovation, Cardiff University School of Law and Politics, 18th February 2015. - 'Non-invasive prenatal testing: divisions, categorisations and public secrets'. Exeter University Department of Sociology
& Philosophy seminar, 15th October 2014. - ‘Non-invasive Prenatal Testing: Pushing at the Boundaries of Screening and Diagnosis’, Symposium on Researching
(Bio)medicine with Care: Cosmopolitics, Affects and Ethics, British Sociological Association Medical Sociology Annual
Conference, Aston University, 11th September 2014. - ‘Tracking NIPD: findings from PhD fieldwork’. Sussex University Centre for Bionetworking, Colloquium on Disability
Detection and Foetal Decision-Making. Sussex University, 16th June 2014. - ‘Non-invasive prenatal testing: pushing at the boundaries of screening and diagnosis’. Cardiff University School of
Social Sciences, Medicine Science and Culture (MeSC) research group seminar, 28th May 2014. - ‘Non-Invasive Prenatal Diagnosis: The Expert's View’. Cardiff University School of Social Sciences, Doctoral
Conference, 23rd October 2013. - Informed consent in noninvasive prenatal testing’ International Genomics Conference, 13th - 14th September 2012,
Radisson Blu, Cardiff. (Poster presentation). - ‘Informed consent in non-invasive prenatal diagnosis’. European Society for Human Genetics Annual
Conference/European Meeting for Psycho Social Aspects of Genetics, Nurnberg, Germany. 25th June 2012. - ‘Emerging prenatal genetic testing technologies: ethical issues and the need for empirical research’. ESRC Genomics
Network conference ‘Genomics in Society: facts, fictions and cultures’, The British Library, London. April 23rd, 2012. - ‘Non-Invasive Prenatal Diagnosis: a Social Science Perspective’. Bristol University Centre for Ethics in Medicine, 20th
February 2012. - ‘Harmonisation in Ethics: conceptual and practical challenges’. P³G Annual Meeting "Harmonization in Practice: A
Platform Based on 50 Studies from 18 Countries", April 26 - 27, 2010. Montreal, Canada. (Poster presentation).
Pwyllgorau ac adolygu
- Cesagene seminar series organising committee, 2014-15
- Socsi Postgrad Café organising committee, 2011-12
- Postgrad Forum on Genetics and Society, regional events (Wales) committee, 2012-13
Cyhoeddiadau
2023
- Steffensen, E. H. et al. 2023. Inclusion of sex chromosomes in noninvasive prenatal testing in Asia, Australia, Europe and the USA: A survey study. Prenatal Diagnosis 43(2), pp. 144-155. (10.1002/pd.6322)
- Channon, S. et al. 2023. Acceptability and feasibility of a planned preconception weight loss intervention in women with long-acting reversible contraception: the Plan-it mixed-methods study. Health Technology Assessment 27(1) (10.3310/NKIX8285)
2022
- Channon, S. et al. 2022. The acceptability of asking women to delay removal of a long-acting reversible contraceptive to take part in a preconception weight loss programme: a mixed methods study using qualitative and routine data (Plan-it). BMC Pregnancy and Childbirth 22, article number: 778. (10.1186/s12884-022-05077-0)
- Roland, D. et al. 2022. Paediatric early warning systems: not a simple answer to a complex question. Archives of Disease in Childhood (10.1136/archdischild-2022-323951)
- Dimond, R., Strange, H. and Hughes, J. 2022. Geneticization. In: Monaghan, L. and Gabe, J. eds. Key Concepts in Medical Sociology. SAGE Key Concepts series Sage, pp. 247-253.
- Allen, D. et al. 2022. Development, implementation and evaluation of an early warning system improvement programme for children in hospital: the PUMA mixed-methods study. Health and Social Care Delivery Research 10(1) (10.3310/CHCK4556)
- Allen, D. et al. 2022. Development, implementation and evaluation of an evidence-based paediatric early warning system improvement programme: the PUMA mixed methods study. BMC Health Services Research 22(1), article number: 9. (10.1186/s12913-021-07314-2)
2021
- Milosevic, S. et al. 2021. Exploring patients’ experiences of analgesia after major lower limb amputation: A qualitative study. BMJ Open 11, article number: e054618. (10.1136/bmjopen-2021-054618)
- Thomas, G. M., Rothman, B. K., Strange, H. and Latimer, J. 2021. Testing times: the social life of non-invasive prenatal testing. Science Technology and Society 26(1), pp. 81-97. (10.1177/0971721820960262)
- Coulman, E. et al. 2021. The acceptability and feasibility of a planned pre-pregnancy weight loss intervention (the Plan-it Study): A Protocol Paper. Clinical Obstetrics, Gynecology and Reproductive Medicine 7(1) (10.15761/COGRM.1000325)
2020
- Gadsbøll, K. et al. 2020. Current use of noninvasive prenatal testing in Europe, Australia and the USA: A graphical presentation. Acta Obstetricia et Gynecologica Scandinavica 99(6), pp. 722-730. (10.1111/aogs.13841)
2018
- Thomas-Jones, E. et al. 2018. A prospective, mixed-methods, before and after study to identify the evidence base for the core components of an effective paediatric early warning system and the development of an implementation package containing those core recommendations for use in the UK: Paediatric early warning system – utilisation and mortality avoidance– the PUMA study protocol. BMC Pediatrics 18(1), article number: 244. (10.1186/s12887-018-1210-z)
- Strange, H. 2018. The fetus as a patient: professional and patient discourse. In: Dagmar, S., Clarke, A. and Dondorp, W. eds. The Fetus as a Patient: A Contested Concept and its Normative Implications. London: Routledge, pp. 78-93., (10.4324/9781315170749)
2017
- Evans, R., White, J., Turley, R., Slater, T., Morgan, H., Strange, H. and Scourfield, J. 2017. Comparison of suicidal ideation, suicide attempt and suicide in children and young people in care and non-care populations: systematic review and meta-analysis of prevalence. Children and Youth Services Review 82, pp. 122-129. (10.1016/j.childyouth.2017.09.020)
- Weightman, A., Farnell, D., Morris, D., Strange, H. and Hallam, G. 2017. A systematic review of information literacy programs in higher education: effects of faceto- face, online, and blended formats on student skills and views. Evidence Based Library and Information Practice 12(3), pp. 20-55. (10.18438/B86W90)
2015
- Strange, H. 2015. P3-67 Patient and professional experiences with non-invasive prenatal diagnosis (NIPD) and testing (NIPT): social and ethical issues raised. Presented at: ISPD 19th International Conference on Prenatal Diagnosis and Therapy, Washington, DC, USA, 12–15 July 2015, Vol. 35. Vol. S1. Prenatal Diagnosis pp. 109-109., (10.1002/pd.4617)
- Johnson, I. G. et al. 2015. Approaches for adult nursing and residential care homes on promoting oral health, preventing dental health problems and ensuring access to dental treatment: Draft Review 3: Barriers and Facilitators. Project Report. [Online]. Cardiff: Cardiff University. Available at: https://www.nice.org.uk/guidance/GID-PHG62/documents/evidence-review-4
- Morgan, F. et al. 2015. Approaches for adult nursing and residential care homes on promoting oral health, preventing dental health problems and ensuring access to dental treatment. Draft Review 2: Best Practice. Project Report. [Online]. Cardiff: Cardiff University. Available at: https://www.nice.org.uk/guidance/GID-PHG62/documents/evidence-review-3
- Weightman, A. L. et al. 2015. Approaches for adult nursing and residential care homes on promoting oral health, preventing dental health problems and ensuring access to dental treatment. Draft Review 1: Effectiveness. Project Report. [Online]. Cardiff: Cardiff University. Available at: https://www.nice.org.uk/guidance/GID-PHG62/documents/evidence-review
- Chadwick, R. and Strange, H. 2015. Biobanking across borders: the challenges of harmonisation. In: Mascalzoni, D. ed. Ethics, Law and Governance of Biobanking., Vol. 14. The International Library of Ethics, Law and Technology New York and London: Springer, pp. 133-139., (10.1007/978-94-017-9573-9_10)
- Weightman, A. L., Farnell, D. J. J., Morris, D. and Strange, H. 2015. Information literacy teaching in Universities - a systematic review of evaluation studies: Preliminary findings for online versus traditional methods. Presented at: Evidence Based Library and Information Practice Conference (EBLIP8), Brisben, Queensland, Australia, 6-8 July 2015.
- Strange, H. 2015. Non-invasive prenatal diagnosis and testing: perspectives on the emergence and translation of a new prenatal testing technology. PhD Thesis, Cardiff University.
2010
- Strange, H. and Chadwick, R. 2010. The Ethics of Nonmedical Sex Selection. Health Care Anaysis 18(3), pp. 252-66. (10.1007/s10728-009-0135-y)
- Strange, H. 2010. Non-medical sex selection: ethical issues. British Medical Bulletin 94(1), pp. 7-20. (10.1093/bmb/ldq002)
2009
- Strange, H. and Chadwick, R. 2009. Harmonisation and standardisation in ethics and governance: conceptual and practical challenges. In: Widdows, H. and Mullen, C. eds. The Governance of Genetic Information: Who Decides?. Cambridge University Press, pp. 201-213.
Addysgu
Teaching:
- MSc Genetic Counselling (Cardiff University). Employed as a lecturer (teaching on bioethics, ethics and infertility,
ethics and new technologies) from 2009 to present. - MSc Tissue Engineering (CITER). Employed as lecturer (teaching on bioethics) from 2013 - 2015.
Student supervision:
- ShiHui Zhu, MSc Genetic Counselling dissertation. ‘Patient experiences of Non-invasive prenatal testing (NIPT) in the
private sector’ (2017) - E. Anderson, MSc Genetic counselling dissertation. ‘Experiences of pre-implantation genetic diagnosis in Wales’
(2016) - C. Giffney, MSc Genetic counselling dissertation. ‘Exploring Pre-implantation Genetic Diagnosis in Ireland’ (2011)
- Amy Bamber, MSc Genetic counselling dissertation. ‘ Attitudes towards non invasive prenatal diagnosis in the Down
syndrome community’ (2012)
Current projects:
PUMA: Paediatric early warning system (PEWS): Utlisation and Mortaility Avoidance
A Prospective, mixed method, before and after study, set within four UK hospitals (two District General Hospitals and Two Specialist Children’s Hospitals): http://pumastudy.com/about-puma
Background: UK paediatric mortality is highest in Europe; A recent survey revealed 85% paediatric inpatient units in the UK were using a track and trigger tool but there was huge variability in the tool being used and most of these were unpublished and un-validated; There is an urgent national need to develop an evidence based PEWS for UK practice.
Study aims: to Identify through a systematic review of the literature the evidence for the core components of a paediatric track and trigger tool; Develop a track and trigger tool implementation package for prospective evaluation; Evaluate the ability of the track and trigger tool to identify serious illness and reduce clinical events by examining core outcomes; Identify the contextual factors that are consequential for tool effectiveness; Identify the key ingredients of successful implementation and normalisation.
Key areas of interest:
Medical sociology, Science and technology studies/STS, bioethics, biopolitics, the sociology of reproduction, prenatal testing, palliative care, genetics and genomics.
Reviewer for:
Bioethics, Health Care Analysis, The Journal of Bioethical Enquiry, Science Technology and Human Values, The Journal of Community Genetics, Sociology of Health and Illness.