Bridging the 'best interest' gap: Improving decision-making for vegetative and minimally conscious patients
Can advocacy make a difference in delivering on, and clarifying, law and guidelines?
To examine how advocacy would be used to address the problems identified by ‘pure’ research to help create change.
This was action-research, involving advocacy and tracking how this might make a difference in practice
This three-year project is funded by the Economic and Social Research Council (ESRC).
The focus of this project was on the role of advocacy – and involved the secondment of an Advocate to work with the academics. This project contributed to three co-authored publication involving collaborations between the Independent Mental Capacity Advocate, Jakki Cowley, the academics and several health care practitioners.
- Kitzinger, J, Kitzinger, C & Cowley, J (2017) When ‘Sanctity of Life’ and ‘Self-Determination’ Clash: Briggs v The Walton Centre NHS Trust & Ors  EWCOP 53, Journal of Medical Ethics
- Cowley, J (2017) How the DoLS can give voice to people with minimal consciousness, Community Care
- Chatfield, D, Lee, S, Cowley, J, Kitzinger, C, Kitzinger, J, Menon, D (2017) A broader role for Independent Mental Capacity Advocates (IMCA) in Critical Care?, Nursing in Critical Care
The project team