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Bridging the 'best interest' gap: Improving decision-making for vegetative and minimally conscious patients

To examine how advocacy would be used to address the problems identified by ‘pure’ research to help create change.


This was action-research, involving advocacy and tracking how this might make a difference in practice


This three-year project is funded by the Economic and Social Research Council (ESRC).


The focus of this project was on the role of advocacy – and involved the secondment of an Advocate to work with the academics. This project contributed to three co-authored publication involving collaborations between the Independent Mental Capacity Advocate, Jakki Cowley,  the academics and several health care practitioners.

The project team

Principal investigator

Professor Jenny Kitzinger

Professor Jenny Kitzinger

Director of Research: Impact and Engagement and Co-Director of the Coma and Disorders of Consciousness Research Centre