Bridging the 'best interest' gap: Improving decision-making for vegetative and minimally conscious patients
To examine how advocacy would be used to address the problems identified by ‘pure’ research to help create change.
This was action-research, involving advocacy and tracking how this might make a difference in practice
This three-year project is funded by the Economic and Social Research Council (ESRC).
The focus of this project was on the role of advocacy – and involved the secondment of an Advocate to work with the academics. This project contributed to three co-authored publication involving collaborations between the Independent Mental Capacity Advocate, Jakki Cowley, the academics and several health care practitioners.
- Kitzinger, J, Kitzinger, C & Cowley, J (2017) When ‘Sanctity of Life’ and ‘Self-Determination’ Clash: Briggs v The Walton Centre NHS Trust & Ors  EWCOP 53, Journal of Medical Ethics
- Cowley, J (2017) How the DoLS can give voice to people with minimal consciousness, Community Care
- Chatfield, D, Lee, S, Cowley, J, Kitzinger, C, Kitzinger, J, Menon, D (2017) A broader role for Independent Mental Capacity Advocates (IMCA) in Critical Care?, Nursing in Critical Care
The project team
Director of Research: Impact and Engagement and Co-Director of the Coma and Disorders of Consciousness Research Centre