My research and evaluation work has a strong qualitative bias with patient, carer and staff experience at the core. Examples include exploration of the employment experiences of life limited young adults, barriers and facilitators to the delivery of specialist palliative care in care homes, a review of adult out of hours specialist palliative care services, and the unmet needs of older caregivers.
Prior to the move into research, I specialised in youth and community development work which included working with local authorities, health boards, charities, and their service users, to develop public health resources and education materials for schools, to introduce a hospital-based youth service, and implement a UK-wide public involvement programme for children and young people with cancer.
Currently I manage the operations of the Marie Curie Palliative Care Research Centre alongside my research work. I hold the position of Public Involvement Academic Lead for the Wales Cancer Research Centre and for the Division of Population Medicine at Cardiff University. (Please see the engagement tab for more info on public Involvement.)
I’m a qualitative researcher with an interest in conducting pragmatic studies that can quickly effect positive change. To date, my research work has focused on health, specifically the lived experience of people with life limiting illnesses , their families, and the frontline health and care professionals who deliver Palliative care services.
I have extensive public involvement experience which includes the development and management of a gold award winning UK-wide CLIC Sargent involvement service newsfor charity CLIC Sargent. Other experience includes supporting the public to influence public policy and spaces, supporting youth parliaments, and the planning and delivery of large-scale public involvement events.
I have held the role of Public Involvement Academic Lead for the Wales Cancer Research Centre (WCRC) and Cardiff University Division of Population Medicine (DPM) since September 2020. These roles involve working with public contributors and a network of Public Involvement leads and support staff within and outside the Cardiff School of Medicine to facilitate and embed public involvement across our research and teaching.
Over the past year we have developed WCRC and Cardiff School of Medicine Public Involvement and Engagement Action Plans and key objectives such as the development and testing of a Public Involvement Impact tool are underway.