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Professor Annmarie Nelson

Professor Annmarie Nelson

Marie Curie Professor of Supportive and Palliative Care; Scientific Director, Marie Curie Palliative Care Research Centre; Academic Lead for Public Involvement and Engagement, School of Medicine.

School of Medicine

Email
nelsona9@cardiff.ac.uk
Telephone
+44 (0)29 2068 7473
Campuses
8th floor, Neuadd Meirionnydd, University Hospital of Wales, Heath Park, Cardiff, CF14 4YS

Overview

Experience

I joined Cardiff University via the Wales Cancer Trials Unit where I worked from 2007-2010. Initially my role was a secondment from the Marie Curie Hospice in Penarth, where I had been working for the previous 17 years. In 2010, my clinical colleagues and I were awarded funding to develop a new research centre, the Marie Curie Palliative Care Research Centre.

The centre has three specified research themes each led by an experienced academic or clinical researcher: Patient and carer experience, Rehabilitation, and VTE and thrombosis with additional projects in all areas of palliative and supportive care, cancer and non- cancer.

My predominant and crosscutting research interest is patient and carer experience of services, interventions, and research. I have worked extensively in palliative care, clinical trials,  and with cancer research teams at all stages, from pre-clinical, early diagnosis, supportive and palliative care to the late effects of treatment, following cure, and in different settings, and using multiple methodologies.I have broad research experience and methodological expertise across palliative care and the cancer clinical research spectrum. My research portfolio includes phase 2/3 clinical trials in oncology and supportive care, as well as large-scale surveys, clinical assessment tool development, implementation research, and multi-centre, multi-country qualitative research. I have particular interests in patient experience, interventions, overtreatment, and decision-making, trials methodologies, and the implementation and impact measurement of research outputs into clinical practice.

Current positions:

  • Marie Curie Professor of Palliative and Supportive Care
  • Scientific Director Marie Curie Research Centre (MCPCRC), Division of Population Medicine, School of Medicine, Cardiff University
  • MCPCRC Theme Lead: Patient and carer experience
  • Chair NCRI Advanced Cancer and End of Life group
  • Programme Lead Optimised Patient Experience , Wales Cancer Research Centre (WCRC)
  • Co-lead Palliative and Supportive Care work package, Primary Care and Emergency centre (PRIME)

Biography

  • Marie Curie Professor of Palliative and Supportive Care
  • Scientific Director Marie Curie Research Centre (MCPCRC), Division of Population Medicine, School of Medicine, Cardiff University

Qualifications

  • PhD: Palliative Care as Progressive Journey: The Interplay of Self, Hope and Death in Nurse-Patient Encounters across Three Care Settings. Department of English, Communication and Philosophy. Health Communication Research Centre. Cardiff University.
  • Post Graduate Diploma in Language and Communication Research (Distinction). Department of English, Communication and Philosophy. Cardiff University.
  • BA (Hons) English Language and Literature (First Class). Open University.
  • Diploma in English Language Studies (Distinction). Open University.

Publications

2021

2020

2019

2018

2017

2016

2015

2014

2013

2012

2011

2010

2008

Teaching

I have been involved with the MSc in Palliative Medicine since 2005.   I have supervised more than 50 students with a 100% pass rate, and a high number of merits and distinctions.

Projects

My portfolio includes research into cancer interventions, management, and decision-making, focusing on colorectal, upper GI, lung, prostate, bladder and brain, and non-cancer disease including respiratory conditions, MND, and dementia support.

I have an interest in trials and study methodologies and the ethics of research in different areas (e.g. mining data from social media, interviewing very ill patients at home, trials equipoise). Another major work stream is the modelling and implementation of Public and Patient Involvement across diverse research groups and organisations.

Project Name

Funder

Funding Dates

Total Funding

Role

 

Validation of Tie2 as the First Tumour Vascular Response Biomarker for VEGF Inhibitors: VALTIVE1 (VALTIVE1)

CRUK

2020-2024

£1,003,449.20

Co-I

Qualitative Lead

BeCovid (Bereavement during Covid-19)

Economic and Social Research Council: UKRI Ideas to Address COVID-19

 

2020 - 2022

£235,000.00

Co-I

Wales Cancer Research Centre: Patient Experience/Physiological resilience work packages

Health and care Research Wales

2020-2025

 

£665,000.00

Work Package lead

Patient Reported Core Outcomes in Brain Tumour Trials: the COBra study

The Brain Tumour Charity:

2020-2022

£ 152,949.00

Co-I

Primary Care and Emergency (PRIME) Centre

Health and Care Research Wales

2020 - 2023

£ 4,634,746.00

Co-I/Palliative Care work package lead

Public perceptions of proton beam therapy

Tenovus I grants

2020-2022

Awarded but withdrawn by funder - Covid

 

£29,999.00

Co-I

Multidisciplinary team meeting model for Allied Health Professionals

Tenovus I grants

2020-2022

Awarded but withdrawn by funder - Covid

 

£30,000.00

Co-I

PhD Funding: Developing a screening tool for the late effects of treatment for brain cancers

 

Marie Curie

2018-2021

£65,500.00

CI/Principal supervisor

Wales Cancer Research Centre Work Package 9 Palliative and Supportive Care

Health and Care Research Wales

2018-2020

£330,000.00

Co-I/Work package lead

Research Assessment Outcome Measures for Malignant Bowel Obstruction (RAMBO)

Marie Curie

2018-2020

£218,403.87

 

Co-I

Qualitative Lead

Physical activity for people with Brain Tumour in the UK and Bangladesh

Tenovus

2018-2020

£29,990

Co-I

CHRONOS: Comparative Health Research Outcomes of NOvel Surgery in prostate cancer

Prostate Cancer UK. Research Innovation Awards

2017-2020

£485,966.00

Co-I

Qualitative Lead

Research development including bereavement services scoping survey

One Wales Palliative Care programme

2017-2020

£75,000

CI

THE EMPOWER PROJECT: EVALUATING A PATIENT DESIGNED TOOL TO REDUCE HARM FROM CANCER ASSOCIATED THROMBOSIS

Tenovus

2017-2018

£29,000.00

Co-I

Commissioned report of summary of Palliative Care minimum  data sets

Survey of Palliative care support to care homes in England and Wales

 

National Council for Palliative Care/ Public Health England

2017-2018

£23,000

CI

Marie Curie Palliative Care Research Centre Infrastructure Funding

Marie Curie

2017 - 2022

£2,170,956.00

Grant

holder/Co-I

Scope2: A randomised Phase II/III trial to study radiotherapy dose escalation in patients with oesophageal cancer treated with definitive chemo-radiation with an embedded Phase II trial for patients with a poor early response using positron emission tomography (PET) CTAAC

CRUK

2017 - 2019

£1,682,836.00

Co-I

Attitudes to death and dying Welsh survey

Velindre End of Life Board

2017 - 2018

£19,745.00

CI

Survey of palliative care provision to care homes 2. draft overall national dataset report

Public Health England

2016-2017

£13,000.00

CI

Top up funding for supplementary analysis of PeolcPSP data

Economic and Social Research Council

2016-2016

£10,000.00

CI

Cariad: CARer-ADministration of as-needed sub-cutaneous medication for breakthrough symptoms in home-based dying patients: a UK study (CARiAD)

NIHR HTA

2016 - 2019

£493,694.00

Co-I

Bereavement: Supporting people bereaved through advanced illness: a systematic review of the evidence and development of a core outcome set for bereavement research in palliative care

Marie Curie

2016 - 2018

£82,000.00

Co-I

HIDDen: DVT Hospice Prevalence observational study. Doppler scans of hospice inpatients to establish prevalence of asymptomatic DVT

NIHR

2016 - 2018

£420,000.00

Co-I

Wales Cancer Research Centre Work Package 9 Palliative and Supportive Care

Health and Care Research Wales

2015-2018

£83,000.00

Co-I

Optimising the patient journey with cancer associated Thrombosis (TOPCAT)

Tenovus

2015 - 2016

£29,940.00

Co-I

Palliative and end of life care Priority Setting Partnership (PeolcPSP)

Marie Curie

2014 -2016

£24,031.00

PI

EAGLE: Improving the wellbeing of men by evaluation and addressing the gastrointestinal  late effects of radical treatment for prostate cancer

Prostate Cancer UK

2014 - 2018

£448,064.00

Co-CI

Marie Curie Palliative Care Research Centre Infrastructure Funding

Marie Curie

2014 - 2017

£1,130,000.00

Grantholder/Co-I

PELICAN:  Patients Experience of living with Cancer Associated Thrombosis

Velindre

2014 - 2015

£20,000.00

Co-I

The challenge pathway: A mixed methods evaluation of an innovative care model for the palliative and end-of-life care of people with dementia (Innovative practice)

Aneurin Bevan Health Board

2014 - 2015

£30,000.00

Co-I

PACT: Development of an intervention to support lung cancer patients and their clinicians

Velindre Cancer Care

2013 - 2017

£201,614.00

CI

Designer: development and part validation of clinical screening tool for late effects of radiotherapy (prostate)

Tenovus

2013 - 2014

£29,264.00

Co-I

AFTER: Free text analysis of palliative care patient satisfaction questionnaires

Tenovus

2013 - 2014

£30,000.00

CI

ROCS (Radiotherapy After Oesophageal Cancer Stenting) Study (ROCS)

NIHR HTA

2012 - 2018

£2,200,000.00

 

Canopy A study of the quality of care needs for patient with idiopathic pulmonary fibrosis and their carers, across disease trajectory

Marie Curie

2012 - 2014

£110,761.00

Co-I

ALICAT: A feasibility study to inform the design of a randomised controlled trial to identify the most clinically and cost effect length of Anticoagulation with Low molecular weight heparin In the treatment of Cancer Associated Thrombosis

NIHR HTA

2012 - 2014

£660,000.00

Co-I

RECC Baseline exercise and cachexia study

Tenovus

2011 – 2012

£30,000.00

Co-I

Qualfrag: Qualitative sub study to the Fragmatic clinical trial

Velindre Charitable Funds

2011 - 2013

£62,516.00

Co-CI

Bolero: Open vs robotic surgery bladder

CRUK

2011 - 2012

£64,000.00

Co-I

El Cid: early chest Xray for lung cancer

NIHR NAEDI

2011 -

£400,000.00

Co-I

Palliative Care Research Development Group

WORD

2010-2013

£74,143.00

Co-I

FOCUS 3: A study to determine the feasibility of molecular selection of therapy using KRAS, BRAF and topo-1 in patients with metastatic or locally advanced colorectal cancer

CRUK

2010-2012

£525,000.00

Co-I

Marie Curie Palliative Care Research Centre Infrastructure Funding

Marie Curie

2010 – 2014

£750,000.00

Grantholder

Palliative Care Cross-Wales Research Roadshow

Velindre

2010 - 2011

£20,000.00

Co-I

QUALZICE: A QUALitative exploration of the experiences of the participants from the ZICE clinical trial (metastatic breast cancer) receiving intravenous or oral bisphosphonates

Velindre Charitable Funds

2008-2010

£36,000.00

CI

BRITECOG : Validating breathlessness measures for use in patients with lung cancer: a cognitive interview study

Velindre Charitable Grants

2008-2010

£8,062.00

Co-I

NMES: Is neuromuscular electrical stimulation an acceptable and feasible supportive therapy for patients with non-small cell lung cancer receiving palliative chemotherapy?

NCRI SUPAC

2008-2010

£110,796.00

Co-I

Career total

 

 

£19,977,425.07

 

Supervision

Palliative and Supportive Care

Treatment decision support for life limiting conditions

Late effects of cancer treatment

Patient and Public Involvement

Patient and carer experience

Past projects

Current PhD supervision

Pamela Smith. Smoking cessation in deprived communities. 2017-2020.

MPhil supervision. 2013-2016: Dr Gareth Watts. The development and validation of a patient reported outcome measure tool for assessing skin toxicities associated with tyrosine kinase inhibitor administration. Co-supervisor. Pass.

Undergraduate Medicine Intercalated degree 2017: Rhianna Church. Decisions around dying in palliative and end of life care.Supervisor. Awarded 2.1

Recent completed MSc projects 2014-2016

MSc: Dr Michelle Hills. Advance care planning for preferred place of death for children and young people with life-limiting and life-threatening conditions: A qualitative study exploring healthcare professionals’ attitudes and discussions with children, young people and their families.
Supervisor. Awarded distinction.

MSc: Mrs Ceri Davies. Attitudes to Sexuality in Specialist Palliative Care Nurses.Supervisor
Awarded Merit

MSc: Dr Megumi Baba. Comparing knowledge and attitudes to palliative care of paediatric oncologists in the UK and Japan.Supervisor. Awarded Royal Society of Medicine national prize and MSc merit

MSc: Elaine McGleish. Nurse independent prescribing in palliative care. Supervisor
Awarded distinction