Skip to main content

Share Your Rare project aims to raise awareness of rare genetic conditions and mental health

12 August 2021

Share Your Rare 1 August 2021
Mae Dr. Sam Chawner yn ysgrifennu pumawd gydag ymwelwyr i’r Syrcas Isatomig

A new collaboration between scientists and artists hopes to raise awareness of the experiences of people affected by rare genetic conditions.

Share Your Rare encourages those with lived experience or researchers in relevant fields to illustrate rare conditions and mental health either as a poem or an illustration, shared via social media.

Cardiff University's Dr. Sam Chawner and Phenotypica, an initiative created by computer scientist Ben Murray and artist Neus Torres Tamarit, are leading the project.

Dr. Chawner’s work aims to understand the link between rare genetic conditions and mental health problems, with Phenotypica in support to communicate people's experiences in creative ways.

By bringing in artists like Ben and Neus, who have a brilliant track record of engaging science art installations, we hope to not only pass the microphone to the rare genetic condition community but also create a new resource to engage with public and policymakers.
Dr Samuel Chawner Medical Research Foundation Fellow, Division of Psychological Medicine and Clinical Neurosciences

Phenotypica's Ben and Neus said, “We are keen to make sure the voice of the community is an integral part of this work and our goal is to make it as accessible as possible for people to give us feedback throughout this project and related future activities.”

Lluniadau sialc yn y prosiect Share Your Rare yn ystod Syrcas Isatomig 2021
The campaign began online and joined this year's Subatomic Circus, hosted by Cardiff Science Festival as part of the city's #SummerOfSmiles.

The event brought families together and #ShareYourRare to life as thoughts, memories and experiences of the last year were drawn on the pavement, on paper and in poems.

Visitors wrote cinquain poems and drew their favourite things or experiences from this summer.

With over thousand in attendance it was a brilliant day out for all involved.

Get involved

You too can get involved as the campaign continues to run online.

You can learn more about the project and take part to help raise awareness of rare genetic and mental health conditions, or contact Sam on and follow #ShareYourRare and #CreativeComplexity on Twitter.

Share this story