Professor Jane Hopkinson
Professor of Nursing
Jane Hopkinson is a cancer, palliative and end of life care nurse and researcher. She trained as a nurse at The Middlesex Hospital London, qualifying in 1984, and then worked clinically in geriatric rehabilitation, cancer and hospice care prior to completing a PhD about end of life care at University of Manchester, 2001. She has worked with clinical and academic teams in locations across the UK, which include the Christie Hospital, Manchester; St Ann’s Hospice Manchester, Macmillan Research Unit, University of Southampton and the Velindre Cancer Centre, Cardiff. In 2011, she took up her current post as Professor of Nursing, Cardiff University.
Professor Hopkinson’s research interests focus on the development and testing of innovations in psychoeducation to help people with cancer and people with dementia to manage symptoms and other health related problems at home. She has particular expertise in the management of weight loss and poor appetite, symptoms of cachexia. Achievements include authorship of more than 80 peer-reviewed publications.
I am a Registered Nurse. I trained at The Middlesex Hospital, London (1981-84), then, gained clinical experience and qualifications in geriatric, cancer and end of life care. In 1990-94, I studied with the Open University leading to the award of a BSc(Hons) in Social Science. I became a full-time researcher following the award of my PhD in Nursing Studies, University of Manchester, which was about the care of dying people in hospital (1998-2001). My Macmillan Post Doctoral Fellowship (2008-11) enabled me to complete training in the design and analysis of clinical trials, London School of Hygiene and Tropical Medicine. I now have experience in the design and successful delivery of both mixed-methods case study research and the development and testing of complex interventions.
I have expertise in the supportive care of people living with cancer cachexia syndrome. I lead, contribute to and supervise projects about cancer cachexia, including consultancy work for pharmaceutical companies. From 2002-2011, I led the Macmillan Weight and Eating Studies (MWES), a series of studies concerned with improving health outcomes for cancer patients living with involuntary weight loss and poor appetite, symptoms of cancer cachexia.
Since 2014 the scope of my research has included supportive care in dementia. The focus of my research is now the development and evaluation of innovative approaches to the management of symptoms and other problems common to people with either cancer or dementia, for example eating difficulties. The emphasis is on improving clinical and quality of life outcomes not only for patients, but also for family carers.
Velindre NHS Trust Charitable Funds
Feb 2014 –
Member of the National Cancer Research Institute (NCRI) Palliative Care Clinical Studies Group
Nov 2016 –
Member of the National Institute for Health Research, Cancer and Nutrition Collaboration, Living with Cancer and Beyond Subgroup
August 2016 –
Healthcare Research Wales working group: Mental capacity and research
Aug 2012 –
Independent Member Velindre NHS Trust Board (Cardiff University Rep.)
Independent member and Chair: Research, Development and Innovation Committee
Independent member: Velindre Trust Audit Committee
Independent member: NHS Wales Shared Services Partnership Audit CommitteeConsultancy
I am a member of the:
Scientific Board, Cachexia Hub, Helsinn Healthcare, see
UK Cancer Anorexia-Cachexia Syndrome Steering Committee, Chugai Pharma, UK.
I teach on undergraduate and postgraduate programmes about the relevance of research for healthcare improvement and innovation.
Current research projects
Oral chemotherapy management in the home: an exploratory case study of treatment adherence in people with cancer living in the Valleys of South East Wales. Funded by: KESS2: Knowledge Economy Skills Scholarships, European Social Fund.
Nurses' decision-making about the delivery of skin care to patients with advanced cancer at the end of life: A vignette based study of a prototype decision making algorithm. Funded by: Cwm Taf/Aneurin Bevan.
REACT project: an investigation of the active components of a specialist home treatment intervention to prevent hospital admission of people with dementia in crisis in the community. Funded by: Healthcare Research Wales, Research for Patient and Public Benefit
Nurse decision-making about the delivery of skin care to patients with advanced cancer at the end of life: an exploratory study to develop a decision support algorithm. Funded by: General Nursing Council.
Feasibility study of a behavioural intervention to reduce fatigue in women undergoing radiotherapy for curable breast cancer. Funded by: Tenovus Innovation Grant.
An international field study for the reliability and validity of the EORTC cancer cachexia module (the EORTC QLQ-CAX24) and the EORTC QLQ-C30 for assessing quality of life in cancer patients with cachexia. Funded by: The European Organization for Research and Treatment of Cancer Quality of Life Group.
Underserved and overlooked: Investigating the management of refusal of care in people with dementia admitted to hospital with an acute condition. Funded by: National Institute for Health Research (NIHR)
Recent research projects
Improving the experience of out-patient cancer treatment for people with comorbid dementia in Wales
Macmillan Associate Lecturer: Impact Evaluation
Cancer Carer Medicines Management (CCMM): an educational intervention for carer management of pain medication in cancer patients at the end of life.
Supportive care needs of informal carers of patients with cancer cachexia syndrome.
I am interested in supervising students in the areas of:
End of life care
I currently supervise:
Abdiraheem Ali (Pharmacist) Oral chemotherapy management in the home: KESS2 studentship
Fathiyyah Alsomali (Cancer Nurse) The Efficacy of Teaching Program on the Rate of Cord Blood Donation to the National Cord Blood Bank in Saudi Arabia
Jane Mathlin (Radiographer) Exploring the experience of altered taste during radiotherapy for head and neck cancer
Sian Lewis (Dietitian) The experiences of head and neck patients receiving enteral nutrition
Anna Jones (Intensive Care Nurse) A Critical Exploration of the Quality of Life of Adult Home Mechanically Ventilated Patients
Hama Ngandu (Respiratory Nurse) - Experiences of Non-Invasive Ventilation in Older People with Hypercapnic Respiratory Failure
David Evans (Radiographer) - Survivorship experiences of working-age adults previously treated for oropharyngeal cancer. Moving towards a post-treatment self, its hidden impact and an absence of recognition: An interpretative phenomenological analysis (PhD awarded 2018)
Sarah Fry (Cancer Nurse) - Perceptions of prostate cancer risk in African and Carribean men in South Wales: implications for health policy and supportive care (PhD awarded 2017)
Nicola West (Cancer Nurse) - Being a carrier and living with the BRCA gene mutation: an interpretive phenomenological study of the experiences of women who elect Risk-Reducing bilateral Mastectomy, their husbands and family (PhD awarded 2017)
Sally Wheelwright (Social Scientist) - Development of a psychoeducational intervention for patients with cancer cachexia and their informal carers (PhD awarded 2017)
Nicola Evans (Mental Health Nurse) - To Explore How a Change Agent Initiates Change in an NHS Outpatient Service (PhD awarded 2014)
Jane Winter (Cancer Nurse) - Living with locally advanced rectal cancer: An exploration of the everydayness of living with rectal cancer. (PhD awarded 2009)
Caroline Hoffman (Cancer Nurse) - An evaluation study of the effectiveness of a mindfulness meditation based stress reduction (MBSR) programme on stress, coping and well-being in women with breast cancer. (PhD awarded 2009)
Jodie Moffatt (Radiographer) - Factors that influence illness behaviour prior to a diagnosis of lung cancer. (PhD awarded 2007)