Dr Stephanie Sivell

2020

• Farnell, D.et al. 2020. The ALERT-B questionnaire: a screening tool for the detection of gastroenterological late effects after radiotherapy for prostate cancer. Clinical and Translational Radiation Oncology 21, pp. 98-103. (10.1016/j.ctro.2020.02.002)
• Harrop, E.et al. 2020. Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care. BMC Palliative Care 19, article number: 29. (10.1186/s12904-020-0532-4)
• Harrop, E.et al. 2020. The impacts and effectiveness of support for people bereaved through advanced illness: a mixed-methods systematic review and thematic synthesis. Palliative Medicine

2019

• Byrne, A.et al. 2019. Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers. Cochrane Database of Systematic Reviews 2019(9), article number: CD013440. (10.1002/14651858.CD013440)
• Hopewell-Kelly, N.et al. 2019. Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper. BMJ Supportive & Palliative Care 9(2), pp. 219-224. (10.1136/bmjspcare-2015-000889)
• Sivell, S.et al. 2019. Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus paper. BMJ Supportive & Palliative Care 9, article number: e14. (10.1136/bmjspcare-2015-000892)

2018

• Morgan, F.et al. 2018. 54 Interventions and support for people bereaved through advanced progressive illness: a mixed-methods systematic review. BMJ Supportive and Palliative Care 8(3), pp. 380-381. (10.1136/bmjspcare-2018-mariecurie.54)
• Longo, M.et al. 2018. 30 Consensus and consistency: development of a core outcome set for evaluating bereavement support in palliative care [Poster abstract]. BMJ Supportive and Palliative Care 8(3), article number: 371. (10.1136/bmjspcare-2018-mariecurie.30)
• Seddon, K.et al. 2018. 40 Detailing public involvement (PI) within a study of bereavement support services for adults bereaved through advanced illness [Poster Abstracts]. BMJ Supportive and Palliative Care 8(3), pp. 374-375. (10.1136/bmjspcare-2018-mariecurie.40)
• Baillie, J.et al. 2018. Symptom management, nutrition and hydration at end-of-life: a qualitative exploration of patients', carers' and health professionals' experiences and further research questions. BMC Palliative Care 17, article number: 60. (10.1186/s12904-018-0314-4)

2017

• Harrop, E.et al. 2017. Managing, making sense of and finding meaning in advanced illness: a qualitative exploration of the coping and wellbeing experiences of patients with lung cancer. Sociology of Health & Illness 39(8), pp. 1448-1464.
• Anagnostou, D.et al. 2017. Development of an intervention to support patients and clinicians with advanced lung cancer when considering systematic anticancer therapy: protocol for the PACT study. BMJ Open 7(7), article number: e015277. (10.1136/bmjopen-2016-015277)

2016

• Woodman, C., Baillie, J. and Sivell, S. 2016. The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence. BMJ Supportive and Palliative Care 6(4), pp. 418-429. (10.1136/bmjspcare-2014-000794)
• Taylor, S.et al. 2016. The three-item ALERT-B questionnaire provides a validated screening tool to detect chronic gastrointestinal symptoms after pelvic radiotherapy in cancer survivors. Clinical Oncology 28(10), pp. e139-e147. (10.1016/j.clon.2016.06.004)
• Harrop, E.et al. 2016. 'I didn't really understand it, I just thought it'd help': exploring the motivations, understandings and experiences of patients with advanced lung cancer participating in a non-placebo clinical IMP trial. Trials 17(1), article number: 329. (10.1186/s13063-016-1460-8)
• Harrop, E.et al. 2016. Palliative and End of Life Care Priority Setting Partnership (PeolcPSP): Bereavement: experiences, needs and supportive interventions.

2015

• Noble, S. I.et al. 2015. A feasibility study to inform the design of a randomised controlled trial to identify the most clinically effective and cost-effective length of Anticoagulation with Low-molecular-weight heparin In the treatment of Cancer-Associated Thrombosis (ALICAT). Health Technology Assessment 19(83), pp. 1-93. (10.3310/hta19830)
• Sivell, S.et al. 2015. Identifying the key elements of an education package to up-skill multidisciplinary adult specialist palliative care teams caring for young adults with life-limiting conditions: an online Delphi study. BMJ Supportive & Palliative Care 5(3), pp. 306-315. (10.1136/bmjspcare-2013-000595)
• Durand, M.et al. 2015. Minimum standards for the certification of patient decision support interventions. Patient Education and Counseling 98(4), pp. 462-486. (10.1016/j.pec.2014.12.009)
• Woodman, C., Baillie, J. and Sivell, S. 2015. Relatives' preferred place of care at the end-of-life: implications for palliative care in the future. BMJ Supportive and Palliative Care 5, pp. 116-117. (10.1136/bmjspcare-2014-000838.38)
• Hopewell-Kelly, N.et al. 2015. The use of social media in a palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5, article number: 120. (10.1136/bmjspcare-2014-000838.47)
• Best, S.et al. 2015. Research priority setting in palliative and end of life care: the James Lind Alliance approach to consulting patient, carers and clinicians. Presented at: Marie Curie Annual Palliative Care Research Conference 2015, London, UK, 27 March 2015.
• Baillie, J.et al. 2015. Risky recruitment: feasibility of recruiting patients to a cancer associated thrombosis clinical trial - insights from an embedded qualitative study. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10th May 2015. pp. 2307-2312.
• Woodman, C., Baillie, J. and Sivell, S. 2015. Family caregivers' preferences for place of care for patients at the end of life: implications of a systematic review for policy and practice. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 31-32.
• Sivell, S.et al. 2015. Social spaces and singular encounters: challenges to conducting qualitative research interviews in palliative and end of life care in the home setting. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 2529-2534.
• Smith, R.et al. 2015. Research priority setting in palliative and end of life care: the James Lind Alliance approach consulting patients, carers and clinicians. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 2529-2534.
• Hopewell-Kelly, N.et al. 2015. Utilising data from social media in palliative care research: developing an ethical framework. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 1121-1128.
• Sivell, S.et al. 2015. Conducting qualitative research interviews with palliative and end of life care patients in the home setting: reflections and recommendations from an academic palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5, article number: 117. (10.1136/bmjspcare-2014-000838.40)

2014

• Woodman, C., Baillie, J. and Sivell, S. 2014. Family caregivers' perceptions surrounding place of care for their relatives at the end-of-life and their perspectives on their relatives' chosen place of care. A qualitative systematic review and thematic synthesis.. Presented at: 14th Annual All Wales Palliative Care Conference, Gregynog, Powys, Wales, 6-7 November 2014.
• Joseph-Williams, N.et al. 2014. Toward minimum standards for certifying patient decision aids: a modified Delphi consensus process. Medical Decision Making 34(6), pp. 699-710. (10.1177/0272989X13501721)
• Woodman, C., Baillie, J. and Sivell, S. 2014. Attitudes of family caregivers towards place or care for their relatives at the end of life: A systematic review and thematic synthesis of the qualitative research. Presented at: Cardiff University Systematic Review Network SysNet Conference 2014, Cardiff, 4 June 2014.

2013

• Lidstone, V.et al. 2013. Transition in palliative care study day series. BMJ Supportive & Palliative Care 3(S1), pp. A48-A49. (10.1136/bmjspcare-2013-000591.131)
• Sivell, S.et al. 2013. Factors influencing the surgery intentions and choices of women with early breast cancer: the predictive utility of an extended theory of planned behaviour. BMC Medical Informatics and Decision Making 13, article number: 92. (10.1186/1472-6947-13-92)
• Sivell, S.et al. 2013. Factors influencing the surgery intentions and choices of women with early breast cancer: the predictive utility of an extended Theory of Planned Behaviour [abstract]. Psycho-Oncology 22(S1), pp. 12-12. (10.1111/j.1099-1611.2013.03239.x)
• Sivell, S.et al. 2013. Free communication FC 12.1 (oral abstract): Educating adult palliative care teams about the needs of transition age young people. What do they need to know?. Presented at: 13th World Congress of the European Association for Palliative Care, Prague, Czech Republic, 30 May - 2 June 2013European Journal of Palliative Care. suppl.. pp. 60.

2012

• Sivell, S.et al. 2012. Increasing readiness to decide and strengthening behavioral intentions: Evaluating the impact of a web-based patient decision aid for breast cancer treatment options (BresDex: www.bresdex.com). Patient Education and Counseling 88(2), pp. 209-217. (10.1016/j.pec.2012.03.012)
• Sivell, S.et al. 2012. Theory-based design and field-testing of an intervention to support women choosing surgery for breast cancer: BresDex. Patient Education and Counseling 86(2), pp. 179-188. (10.1016/j.pec.2011.04.014)

2011

• Elwyn, G.et al. 2011. How to develop web-based decision support interventions for patients: a process map. Patient Education and Counseling 82(2), pp. 260-265. (10.1016/j.pec.2010.04.034)
• Sivell, S.et al. 2011. Understanding surgery choices for breast cancer: how might the Theory of Planned Behaviour and the Common Sense Model contribute to decision support interventions?. Health Expectations 14(s1), pp. 6-19. (10.1111/j.1369-7625.2009.00558.x)
• Caldon, L. J. M.et al. 2011. Clinicians' concerns about decision support interventions for patients facing breast cancer surgery options: understanding the challenge of implementing shared decision-making. Health Expectations 14(2), pp. 133-146. (10.1111/j.1369-7625.2010.00633.x)

2009

• Caldon, L.et al. 2009. New technologies to support the decisions of women facing surgical choices for breast cancer: the reactions and concerns of health professionals [Abstract]. Psycho-oncology 18(3), pp. 320. (10.1002/pon.1549)
• Elwyn, G.et al. 2009. Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). PLoS ONE 4(3), article number: e4705. (10.1371/journal.pone.0004705)

2008

• Edwards, A. G.et al. 2008. Interventions to improve risk communication in clinical genetics: systematic review. Patient Education and Counseling 71(1), pp. 4-25. (10.1016/j.pec.2007.11.026)
• Sivell, S.et al. 2008. How risk is perceived, constructed and interpreted by clients in clinical genetics, and the effects on decision making: systematic review. Journal of Genetic Counselling 17(1), pp. 30-63. (10.1007/s10897-007-9132-1)
• Iredale, R.et al. 2008. Exploring the requirements for a decision aid on familial breast cancer in the UK context: a qualitative study with patients referred to a cancer genetics service. Journal of Evaluation in Clinical Practice 14(1), pp. 110-115. (10.1111/j.1365-2753.2007.00811.x)

2007

• Gaff, C. L.et al. 2007. Process and outcome in communication of genetic information within families: a systematic review. European Journal of Human Genetics 15(10), pp. 999-1011. (10.1038/sj.ejhg.5201883)
• Sivell, S.et al. 2007. Cancer genetic risk assessment for individuals at risk of familial breast cancer. Cochrane Database of Systematic Reviews 2, article number: CD003721. (10.1002/14651858.CD003721.pub2)

2006

• Rapport, F.et al. 2006. Decision aids for familial breast cancer: exploring women's views using focus groups. Health Expectations 9(3), pp. 232-244. (10.1111/j.1369-7625.2006.00392.x)

2005

• Brain, K. E.et al. 2005. An exploratory comparison of genetic counselling protocols for HNPCC predictive testing. Clinical Genetics 68(3), pp. 255-261. (10.1111/j.1399-0004.2005.00491.x)

2001

• Smith, A. P.et al. 2001. The combined effects of occupational factors on objective measures of performance and health. In: Hanson, M. A. ed. Contemporary Ergonomics 2001. London: Taylor & Francis, pp. 203-208.
• Smith, A. P.et al. 2001. The combined effects of occupational factors on subjective reports of health. In: Hanson, M. A. ed. Contemporary Ergonomics 2001. London: Taylor & Francis, pp. 197-202.