Dr Stephanie Sivell
Marie Curie Research Associate
- sivells2@cardiff.ac.uk
- +44 (0)29 2068 7198
- Marie Curie Palliative Care Research Centre, Neuadd Meirionnydd
Overview
Overview
I am an experienced researcher in both quantitative and qualitative methods, and analysis in health-related research. My research interests include: health psychology; health communication; decision-making; design, development and evaluation of theory-based complex interventions; healthcare improvement; mixed methods evaluation; palliative and supportive care; cancer and chronic conditions.
Biography
Education & Qualifications
2014: Ph.D by Published Works: "Supporting decision-making using a theory based intervention: application of an extended Theory of Planned Behaviour and the Common Sense Model of Illness Representations to support women choosing surgery for early breast cancer", Cardiff University
2005: M.Phil (Occupational & Health Psychology): “Combined Effects of Occupational Health Hazards”, University of Wales, Cardiff
1999: BA (Hons) Psychology (2:1), University of Wales, Cardiff
Training & Development
2008: Internet-Based Health Psychology Interventions: Maximising their Potential; Synergy 2008 Workshop: European Heath Psychology Society
2007: Dartmouth Summer Institute for Informed Patient Choice; Dartmouth College, NH, U.S.A
2007: Psychology of Decision Making; Department of Psychology, Queen’s University, Canada
2007: Advanced Quantitative Research Methods; Cardiff School of Social Sciences, Cardiff University
Career Overview
2011 - Present: Marie Curie Research Associate; Marie Curie Palliative Care Research Centre, Division of Population Medicine, School of Medicine, Cardiff University
2006 - 2011: Research Associate; Department of Primary Care and Public Health, School of Medicine, Cardiff University
2006: Project Officer (Secondment); Department of General Practice, School of Medicine, Cardiff University
2004 - 2006: Research Assistant; Cancer Genetics Services for Wales, Institute of Medical Genetics, Cardiff University
2001 - 2003: Research Assistant; Department of Geriatric Medicine, University of Wales College of Medicine
2001: Research Assistant; Academic Unit of Psychiatry and Behavioural Sciences, School of Medicine, University of Leeds
2000-2001: MPhil Studentship; Centre for Occupational and Health Psychology, University of Wales, Cardiff
1999-2000: Research Assistant; Centre for Occupational and Health Psychology, University of Wales, Cardiff
Professional memberships
External Memberships
- Fellow of the Dartmouth Summer Institute for Informed Patient Choice
- British Psychological Society
Internal Memberships
- Healthcare Communication and Quality, Cardiff University School of Medicine
Publications
2020
- Harrop, E.et al. 2020. The impacts and effectiveness of support for people bereaved through advanced illness: a systematic review and thematic synthesis. Palliative Medicine 34(7), pp. 871-888. (10.1177/0269216320920533)
- Farnell, D.et al. 2020. The ALERT-B questionnaire: a screening tool for the detection of gastroenterological late effects after radiotherapy for prostate cancer. Clinical and Translational Radiation Oncology 21, pp. 98-103. (10.1016/j.ctro.2020.02.002)
- Harrop, E.et al. 2020. Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care. BMC Palliative Care 19, article number: 29. (10.1186/s12904-020-0532-4)
2019
- Byrne, A.et al. 2019. Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers. Cochrane Database of Systematic Reviews 2019(9), article number: CD013440. (10.1002/14651858.CD013440)
- Hopewell-Kelly, N.et al. 2019. Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper. BMJ Supportive & Palliative Care 9(2), pp. 219-224. (10.1136/bmjspcare-2015-000889)
- Sivell, S.et al. 2019. Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus paper. BMJ Supportive & Palliative Care 9, article number: e14. (10.1136/bmjspcare-2015-000892)
2018
- Longo, M.et al. 2018. 30 Consensus and consistency: development of a core outcome set for evaluating bereavement support in palliative care [Poster abstract]. BMJ Supportive and Palliative Care 8(3), article number: 371. (10.1136/bmjspcare-2018-mariecurie.30)
- Seddon, K.et al. 2018. 40 Detailing public involvement (PI) within a study of bereavement support services for adults bereaved through advanced illness [Poster Abstracts]. BMJ Supportive and Palliative Care 8(3), pp. 374-375. (10.1136/bmjspcare-2018-mariecurie.40)
- Morgan, F.et al. 2018. 54 Interventions and support for people bereaved through advanced progressive illness: a mixed-methods systematic review. BMJ Supportive and Palliative Care 8(3), pp. 380-381. (10.1136/bmjspcare-2018-mariecurie.54)
- Baillie, J.et al. 2018. Symptom management, nutrition and hydration at end-of-life: a qualitative exploration of patients', carers' and health professionals' experiences and further research questions. BMC Palliative Care 17, article number: 60. (10.1186/s12904-018-0314-4)
2017
- Harrop, E.et al. 2017. Managing, making sense of and finding meaning in advanced illness: a qualitative exploration of the coping and wellbeing experiences of patients with lung cancer. Sociology of Health & Illness 39(8), pp. 1448-1464.
- Anagnostou, D.et al. 2017. Development of an intervention to support patients and clinicians with advanced lung cancer when considering systematic anticancer therapy: protocol for the PACT study. BMJ Open 7(7), article number: e015277. (10.1136/bmjopen-2016-015277)
2016
- Woodman, C., Baillie, J. and Sivell, S. 2016. The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence. BMJ Supportive and Palliative Care 6(4), pp. 418-429. (10.1136/bmjspcare-2014-000794)
- Taylor, S.et al. 2016. The three-item ALERT-B questionnaire provides a validated screening tool to detect chronic gastrointestinal symptoms after pelvic radiotherapy in cancer survivors. Clinical Oncology 28(10), pp. e139-e147. (10.1016/j.clon.2016.06.004)
- Harrop, E.et al. 2016. 'I didn't really understand it, I just thought it'd help': exploring the motivations, understandings and experiences of patients with advanced lung cancer participating in a non-placebo clinical IMP trial. Trials 17(1), article number: 329. (10.1186/s13063-016-1460-8)
- Harrop, E.et al. 2016. Palliative and End of Life Care Priority Setting Partnership (PeolcPSP): Bereavement: experiences, needs and supportive interventions.
2015
- Noble, S. I.et al. 2015. A feasibility study to inform the design of a randomised controlled trial to identify the most clinically effective and cost-effective length of Anticoagulation with Low-molecular-weight heparin In the treatment of Cancer-Associated Thrombosis (ALICAT). Health Technology Assessment 19(83), pp. 1-93. (10.3310/hta19830)
- Sivell, S.et al. 2015. Identifying the key elements of an education package to up-skill multidisciplinary adult specialist palliative care teams caring for young adults with life-limiting conditions: an online Delphi study. BMJ Supportive & Palliative Care 5(3), pp. 306-315. (10.1136/bmjspcare-2013-000595)
- Durand, M.et al. 2015. Minimum standards for the certification of patient decision support interventions. Patient Education and Counseling 98(4), pp. 462-486. (10.1016/j.pec.2014.12.009)
- Woodman, C., Baillie, J. and Sivell, S. 2015. Relatives' preferred place of care at the end-of-life: implications for palliative care in the future. BMJ Supportive and Palliative Care 5, pp. 116-117. (10.1136/bmjspcare-2014-000838.38)
- Hopewell-Kelly, N.et al. 2015. The use of social media in a palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5, article number: 120. (10.1136/bmjspcare-2014-000838.47)
- Best, S.et al. 2015. Research priority setting in palliative and end of life care: the James Lind Alliance approach to consulting patient, carers and clinicians. Presented at: Marie Curie Annual Palliative Care Research Conference 2015, London, UK, 27 March 2015.
- Baillie, J.et al. 2015. Risky recruitment: feasibility of recruiting patients to a cancer associated thrombosis clinical trial - insights from an embedded qualitative study. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10th May 2015. pp. 2307-2312.
- Woodman, C., Baillie, J. and Sivell, S. 2015. Family caregivers' preferences for place of care for patients at the end of life: implications of a systematic review for policy and practice. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 31-32.
- Sivell, S.et al. 2015. Social spaces and singular encounters: challenges to conducting qualitative research interviews in palliative and end of life care in the home setting. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 2529-2534.
- Smith, R.et al. 2015. Research priority setting in palliative and end of life care: the James Lind Alliance approach consulting patients, carers and clinicians. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 2529-2534.
- Hopewell-Kelly, N.et al. 2015. Utilising data from social media in palliative care research: developing an ethical framework. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 1121-1128.
- Sivell, S.et al. 2015. Conducting qualitative research interviews with palliative and end of life care patients in the home setting: reflections and recommendations from an academic palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5, article number: 117. (10.1136/bmjspcare-2014-000838.40)
2014
- Woodman, C., Baillie, J. and Sivell, S. 2014. Family caregivers' perceptions surrounding place of care for their relatives at the end-of-life and their perspectives on their relatives' chosen place of care. A qualitative systematic review and thematic synthesis.. Presented at: 14th Annual All Wales Palliative Care Conference, Gregynog, Powys, Wales, 6-7 November 2014.
- Joseph-Williams, N.et al. 2014. Toward minimum standards for certifying patient decision aids: a modified Delphi consensus process. Medical Decision Making 34(6), pp. 699-710. (10.1177/0272989X13501721)
- Woodman, C., Baillie, J. and Sivell, S. 2014. Attitudes of family caregivers towards place or care for their relatives at the end of life: A systematic review and thematic synthesis of the qualitative research. Presented at: Cardiff University Systematic Review Network SysNet Conference 2014, Cardiff, 4 June 2014.
2013
- Lidstone, V.et al. 2013. Transition in palliative care study day series. BMJ Supportive & Palliative Care 3(S1), pp. A48-A49. (10.1136/bmjspcare-2013-000591.131)
- Sivell, S.et al. 2013. Factors influencing the surgery intentions and choices of women with early breast cancer: the predictive utility of an extended theory of planned behaviour. BMC Medical Informatics and Decision Making 13, article number: 92. (10.1186/1472-6947-13-92)
- Sivell, S.et al. 2013. Factors influencing the surgery intentions and choices of women with early breast cancer: the predictive utility of an extended Theory of Planned Behaviour [abstract]. Psycho-Oncology 22(S1), pp. 12-12. (10.1111/j.1099-1611.2013.03239.x)
- Sivell, S.et al. 2013. Free communication FC 12.1 (oral abstract): Educating adult palliative care teams about the needs of transition age young people. What do they need to know?. Presented at: 13th World Congress of the European Association for Palliative Care, Prague, Czech Republic, 30 May - 2 June 2013European Journal of Palliative Care. suppl.. pp. 60.
2012
- Sivell, S.et al. 2012. Increasing readiness to decide and strengthening behavioral intentions: Evaluating the impact of a web-based patient decision aid for breast cancer treatment options (BresDex: www.bresdex.com). Patient Education and Counseling 88(2), pp. 209-217. (10.1016/j.pec.2012.03.012)
- Sivell, S.et al. 2012. Theory-based design and field-testing of an intervention to support women choosing surgery for breast cancer: BresDex. Patient Education and Counseling 86(2), pp. 179-188. (10.1016/j.pec.2011.04.014)
2011
- Elwyn, G.et al. 2011. How to develop web-based decision support interventions for patients: a process map. Patient Education and Counseling 82(2), pp. 260-265. (10.1016/j.pec.2010.04.034)
- Sivell, S.et al. 2011. Understanding surgery choices for breast cancer: how might the Theory of Planned Behaviour and the Common Sense Model contribute to decision support interventions?. Health Expectations 14(s1), pp. 6-19. (10.1111/j.1369-7625.2009.00558.x)
- Caldon, L. J. M.et al. 2011. Clinicians' concerns about decision support interventions for patients facing breast cancer surgery options: understanding the challenge of implementing shared decision-making. Health Expectations 14(2), pp. 133-146. (10.1111/j.1369-7625.2010.00633.x)
2009
- Caldon, L.et al. 2009. New technologies to support the decisions of women facing surgical choices for breast cancer: the reactions and concerns of health professionals [Abstract]. Psycho-oncology 18(3), pp. 320. (10.1002/pon.1549)
- Elwyn, G.et al. 2009. Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). PLoS ONE 4(3), article number: e4705. (10.1371/journal.pone.0004705)
2008
- Edwards, A. G.et al. 2008. Interventions to improve risk communication in clinical genetics: systematic review. Patient Education and Counseling 71(1), pp. 4-25. (10.1016/j.pec.2007.11.026)
- Sivell, S.et al. 2008. How risk is perceived, constructed and interpreted by clients in clinical genetics, and the effects on decision making: systematic review. Journal of Genetic Counselling 17(1), pp. 30-63. (10.1007/s10897-007-9132-1)
- Iredale, R.et al. 2008. Exploring the requirements for a decision aid on familial breast cancer in the UK context: a qualitative study with patients referred to a cancer genetics service. Journal of Evaluation in Clinical Practice 14(1), pp. 110-115. (10.1111/j.1365-2753.2007.00811.x)
2007
- Gaff, C. L.et al. 2007. Process and outcome in communication of genetic information within families: a systematic review. European Journal of Human Genetics 15(10), pp. 999-1011. (10.1038/sj.ejhg.5201883)
- Sivell, S.et al. 2007. Cancer genetic risk assessment for individuals at risk of familial breast cancer. Cochrane Database of Systematic Reviews 2, article number: CD003721. (10.1002/14651858.CD003721.pub2)
2006
- Rapport, F.et al. 2006. Decision aids for familial breast cancer: exploring women's views using focus groups. Health Expectations 9(3), pp. 232-244. (10.1111/j.1369-7625.2006.00392.x)
2005
- Brain, K. E.et al. 2005. An exploratory comparison of genetic counselling protocols for HNPCC predictive testing. Clinical Genetics 68(3), pp. 255-261. (10.1111/j.1399-0004.2005.00491.x)
2001
- Smith, A. P.et al. 2001. The combined effects of occupational factors on objective measures of performance and health. In: Hanson, M. A. ed. Contemporary Ergonomics 2001. London: Taylor & Francis, pp. 203-208.
- Smith, A. P.et al. 2001. The combined effects of occupational factors on subjective reports of health. In: Hanson, M. A. ed. Contemporary Ergonomics 2001. London: Taylor & Francis, pp. 197-202.
Teaching
Ph.D
- Francesca Mazzaschi: Developing a screening tool for the late effects of treatment for brain cancers. 2018-present, co-supervisor.
MSc Palliative Medicine
Teaching taught modules on MSc Palliative Medicine, Cardiff University School of Medicine, 2012 to present.
Research Supervision:
- Louise Kraunsoe (MSc Palliative Medicine 2017-2018)
- Megumi Baba (MSc Palliative Medicine 2012-2014)
- Elaine McGleish (MSc Palliative Medicine 2012-2014)
- Kate Barnabas (MSc Palliative Medicine: 2011-2012)
BSc Intercalated Medicine
Assessor for the Cardiff University School of Medicine BSc Intercalated Route (Clinical Epidemiology), 2014 to present.
Research Supervision:
- Emma Fiddimore (Intercalated BSc Student: Population Medicine: 2020-2021)
- Caroline Woodman (Intercalated BSc Student: Clinical Epidemiology: 2013-2014)
- William Marsh (Intercalated BSc Student; Public Health Route: 2009-2010)
Funding
Byrne A, Nelson A, Torrens-Burton A, Sivell S, Adams R, Grant R, Calvert M, Watts C, Bulbeck H, Seddon K. Patient Reported Core Outcomes in Brain Tumour Trials: the COBra study. The Brain Tumour Charity, £152,949, 2020-2022
Sivell S, Nelson A, Staffurth JN, Shaw P, Campbell S. Exploring cancer patients' expectations and experiences of Proton Bean Therapy in the UK. Tenovus Cancer Care iGrant, £29,999, 2020-2021 (Funding redacted due to COVID-19)
Harrop E, Longo M, Sivell S, Newman A, Nelson A, Byrne A, Seddon K. An action research project to develop and evaluate a new model of therapy led MDT meetings and integrated care pathways for patients at a specialist cancer treatment centre. Tenovus Cancer Care iGrant, £30,000, 2020-2021 (Funding redacted due to COVID-19)
Sivell S, Nelson S, Baddeley E, Islam I. DIVERSE COMMUNITIES EVALUATION PROJECT – ‘Improving access to end of life care for Diverse Communities of Cardiff. Marie Curie Hospice, Cardiff and the Vale, Penarth, £6,000. 2018.
Harrop E, Nelson A, Sivell S, Morgan F. Supporting people bereaved through advanced illness: a systematic review of the evidence and development of a core outcome set for bereaved research in palliative care. Marie Curie Cancer Care, £82K, 2016-2018.
Nelson A, Sivell S, Byrne A, Lester J, Noble S. PACT: Development of an intervention to support lung cancer Patients and their clinicians when considering systematic Anti-Cancer Therapy. Velindre NHS Trust Charitable Funds, £200K, 2014-2015.