Overview
I am an experienced children$acirc; s nurse and senior lecturer who has been funded by Cardiff University to undertake a three year PhD. My study is about the nature of decision making in teenagers and young adults aged between 16 and 24 years who are receiving treatment for cancer. It will explore autonomy and dependence in a range of relevant contexts, including: everyday issues, life changing events and treatment decisions.
Research
Thesis
'Research Autonomy, dependence and decision making in teenagers and young adults receiving cancer treatment'
Objectives
1. Using a qualitative case study design and methods generate new knowledge of the relationships between autonomy, dependency and decision-making in young people undergoing treatment for cancer;
2. To explore the views and experiences of parents, healthcare professionals and friends about decision making during cancer treatment;
3. To examine interactions involving decision making in oncology outpatient settings;
4. To undertake a review of case notes from each of the five cases regarding decision making processes.
Design and methods
A multiple case study design will be used to explore the experience of decision making in teenagers and young adults utilising mixed methods (interviews, observation and documentary analysis of healthcare records). Teenagers and young adults with cancer, parents, health care professionals and one person nominated by each case will be interviewed to provide multiple perspectives on decision making during cancer treatment. Observation of oncology outpatient appointments will take place for each case and the healthcare records of each case will be explored to identify decision making processes. The study will be conducted at a single site in South Wales.
User and professional involvement
Cancer survivors and professionals working for the Teenage Cancer Trust have been involved in the development of the study and will continue to act as a source of reference throughout the three years. Findings from the study will be shared with those working in the field of teenage and young adult cancer who are able to influence the delivery of care to this group.
Supervisors
Publications
2024
- Gale, N., Jones, U., Rees, T., Hicks, A., Davies, J., Holliday, S. and Hopkinson, J. 2024. A cancer personalised activity and lifestyle tool (CAN-PAL): a codesign study with patients and healthcare professionals. Journal of Clinical Nursing 33(2), pp. 572-579. (10.1111/jocn.16931)
2022
- Brimble, M. J., Anstey, S., Davies, J., Dunn, C. and Jones, A. 2022. Using mobile phones, WhatsApp and phone interviews to explore how children?s hospice nurses manage long-term relationships with parents: a feasibility pilot. Nurse Researcher 30(3) (10.7748/nr.2022.e1849)
- Baillie, J. et al. 2022. An innovation project to enhance students' experiences of a postgraduate research programme. Presented at: NET2022 Conference, Lancaster, England, 06-07 September 2022.
2021
- Davies, J. P., McGill, B. C., Sansom-Daly, U. M., Wakefield, C. E. and Kelly, D. M. 2021. "This is the first time I've talked about this": considerations when conducting qualitative research interviews with adolescents and young adults with cancer. Journal of Adolescent and Young Adult Oncology 10(5), pp. 540-548. (10.1089/jayao.2020.0122)
- Pickering, D., Gill, P., Reagon, C. and Davies, J. 2021. Voices of disabled children about their well-being from their level of participation in recreational activities. Presented at: Children & Young People’s Mental Health Early Career Researchers’ Forum, Online, 23 and 24th September 2021.
2020
- Brimble, M., Anstey, S. and Davies, J. 2020. Long-term nurse–parent relationships in paediatric palliative care: a narrative literature review. In: Synopsis International digest of children’s palliative care research abstract., Vol. 14. Bristol: Together for Short Lives
- Brown, P., Jones, A. and Davies, J. 2020. Shall I tell my mentor? Exploring the mentor-student relationship and its impact on students’ raising concerns on clinical placement. Journal of Clinical Nursing 29(17-18), pp. 3298-3310. (10.1111/jocn.15356)
2019
- Pickering, D., Gill, P., Davies, J. and Reagon, C. 2019. The authenticity of using visual data to represent the emotional well-being of children and young people with cerebral palsy. Presented at: Physiotherapy UK, Birmingham, UK, 1-2 November 2019.
- Brimble, M., Anstey, S. and Davies, J. 2019. Long term nurse – parent relationships in paediatric palliative care: A narrative literature review. International Journal of Palliative Nursing 25(11) (10.12968/ijpn.2019.25.11.542)
- Davies, J., Hannigan, B. and Kelly, D. 2019. The experience of partners supporting adolescents and young adults with cancer. Journal of Advanced Nursing 75(11), pp. 2890-2898. (10.1111/jan.14125)
- Pickering, D., Gill, P., Reagon, C. and Davies, J. 2019. Audio and visual data to represent the emotional well-being from disabled children and young people’s participation in recreational activities. Presented at: Childhood and Youth Research Group, Cardiff, UK, 12 June 2019.
- Davies, J. 2019. The experience and role of partners in helping to meet the support needs of adolescents and young adults with cancer. Journal of Advanced Nursing 75(5), pp. 1119-1125. (10.1111/jan.13944)
- Pickering, D., Gill, P., Reagon, C. and Davies, J. 2019. The authenticity of visual methods with disabled children and young people who seek to participate in recreational activities. Presented at: Postgraduate Research Symposium, Cardiff University, Cardiff, UK, 10 April 2019.
- Pickering, D., Gill, P., Reagon, C. and Davies, J. 2019. The authenticity of visual methods with disabled children and young people who seek to participate in recreational activities.. Presented at: Qualitative Research Symposium, University of Bath, Bath, UK, 30 January 2019.
- Pickering, D., Gill, P., Reagon, C. and Davies, J. 2019. The authenticity of using visual data to represent the emotional well-being of children and young people with cerebral palsy. Presented at: American Association of cerebral palsy and developmental medicine, Anaheim, USA, 18-21 September 2019. pp. -.
2018
- Davies, J., Kelly, D. and Hannigan, B. 2018. 'Life then', 'life interrupted', 'life reclaimed': the fluctuation of agency in teenagers and young adults with cancer. European Journal of Oncology Nursing 36, pp. 48-55. (10.1016/j.ejon.2018.05.005)
2017
- Pickering, D., Gill, P., Reagon, C. and Davies, J. 2017. 'Dragons and couch potatoes': Meanings of participation using metaphors from children and young people with cerebral palsy.. Presented at: European Academy of Childhood Disability, Amsterdam. The Netherlands, 17-20 May 2017.
- Pickering, D., Gill, P., Reagon, C. and Davies, J. 2017. Voices and choices for disabled children and young people about participation in recreational activities: Creating their future stories with collage.. Presented at: European Academy of Childhood Disability, Amsterdam, The Netherlands, 17-20 May 2017.
2015
- Davies, J. P., Kelly, D. M. and Hannigan, B. 2015. Autonomy and dependence: a discussion paper on decision-making in teenagers and young adults undergoing cancer treatment. Journal of Advanced Nursing 71(9), pp. 2031-2040. (10.1111/jan.12669)
- Davies, J. P. 2015. The fluctuation of agency in teenagers and young adults with cancer. PhD Thesis, Cardiff University.
2012
- Davies, J. P., Nathan, M. M. and Clarke, D. 2012. An evaluation of a complex simulated scenario with final year undergraduate children's nursing students. Collegian: Journal of the Royal College of Nursing Australia 19(3), pp. 131-138. (10.1016/j.colegn.2012.04.005)
- Davies, J. P. and Willsher, M. 2012. Professional boundaries when woking with adolescents. British Journal of Nursing 21(17-S), pp. S23-S30.
- Davies, J. P. and Clarke, D. 2012. Achievement of clinical competences/proficiencies. In: Dawson, P. et al. eds. Oxford Handbook of Clinical Skills for Children and Young People. Oxford Handbooks in Nursing Oxford: Oxford University Press, pp. 16-17.
- Davies, J. P. and Clarke, D. 2012. Teaching skills to children, young people, families and carers. In: Dawson, P. et al. eds. Oxford Handbook of Clinical Skills for Children and Young People. Oxford Handbooks in Nursing Oxford: Oxford University Press, pp. 54-55.
2010
- Clarke, D. J., Davies, J. P. and Stead, P. 2010. Interprofessional simulation: the experience of occupational therapy an child branch nursing students participating in a two week problem based learning and simulation activity. International Journal of Clinical Skills. 4(2), pp. 96-100.
- Clarke, D. and Davies, J. P. 2010. Key concepts. In: Trigg, E. and Mohammed, T. eds. Practices in Children's Nursing: Guidelines for Hospital and Community. 3rd ed.. Churchill Livingstone, pp. 3-21.
- Stead, P., Clarke, D. and Davies, J. P. 2010. Interprofessional education in Wales: Case studies in health and social care. The Higher Education Academy. Available at: http://www.health.heacademy.ac.uk/rp/publications/
2009
- Clarke, D. J. and Davies, J. P. 2009. Learning to practise: 20 years of change in children's nursing education. Paediatric Nursing 21(2), pp. 15-17.
2007
- Davies, J. P. and Huws-Thomas, M. V. 2007. Care and management of adolescents with mental health problems and disorders. Nursing Standard 21(5), pp. 49-56.
2006
- Davies, J. P. and Lowes, L. M. 2006. Development and organisation of child and adolescent mental health services. British Journal of Nursing 15(11), pp. 604-610.
2005
- McNee, P., Clarke, D. and Davies, J. P. 2005. The teaching of clinical skills in the context of children's nursing: a UK survey. Journal of Child Health Care 9(3), pp. 208-221. (10.1177/1367493505054418)
- McNee, P., Clarke, D. J. and Davies, J. P. 2005. The teaching of clinical skills in the context of children's nursing: a UK survey. Journal of Child Health Care 9(3), pp. 208-221. (10.1177/1367493505054418)
2004
- Davies, J. P. and Clarke, D. 2004. Clinical skills acquisition in children's nursing: An international perspective.. Paediatric Nursing 16(2), pp. 23-26.
2003
- Cresswell, A., Davies, J. P. and Hannigan, B. 2003. Fit for mental health practice?. Paediatric Nursing 151(1), pp. 26-29.
2002
- Davies, J., Cresswell, A. and Hannigan, B. 2002. Child and adolescent mental health services: rhetoric and reality. Paediatric Nursing 14(3), pp. 26-28.
- Clarke, D., Davies, J. P. and McNee, P. 2002. The case for a children's nursing skills laboratory. Paediatric Nursing 14970, pp. 36-39.