Dementia care experiences – understanding diversity, implementing equality, creating shared learning
This project aims to understand the different ways in which dementia is experienced by diverse communities (in relation to ethnicity, sexuality and disability) across Wales.
It also aims to contribute to increasing participation, breaking down barriers, reducing invisibility, and improving dementia services to these communities.
Little is known about the dementia experiences and additional challenges faced by communities with multiple identities linked to ethnic background, sexuality, disability and class. Stigma across cognitive impairment, dementia, and physical disability can be co-occurring and may interact with other forms of stigma related to social identities including race, gender, and sexuality.
Stigma is powerfully experienced by people living with dementia and particularly by those from minority communities, because it can create additional barriers to accessing necessary social and structural supports, which can intensify their experiences of exclusion and invisibility.
The aim of this project is to address this significant gap in engaging and understanding the needs of diverse communities of people living with dementia and their carers in Wales.
To achieve this aim, the project will deliver against the following objectives:
- engage people living with dementia, carers and healthcare professionals in face-to-face meetings and online discussions
- disseminate and communicate findings through creative means back to the engaged communities and relevant healthcare providers
- develop a dementia cultural competence toolkit to support the inclusion of diverse communities of people with dementia and carers in research
- use the findings to generate new research project ideas with participating organisations as co-applicants.
This project is funded by Higher Education Funding Council for Wales.