Ewch i’r prif gynnwys
Yr Athro Jane Hopkinson

Yr Athro Jane Hopkinson

Athro Nyrsio a Gofal Canser Rhyngddisgyblaethol Velindre

+44 (0)29 206 88562
Ystafell 13.10, Tŷ Eastgate, Heol Casnewydd, Caerdydd, CF24 0AB
Ar gael fel goruchwyliwr ôl-raddedig


I am a Registered General Nurse (The Middlesex Hospital, London) and hold an Honours degree in social science (Open University), Post Graduate Diploma in Clinical Trials (London School of Hygiene and Tropical Medicine and PhD in Nursing Studies (University of Manchester). I have a long standing interest in practice development and research into supportive, palliative and end of life care.

Academic Interests

My research interests and expertise include Phase I-II trials of psychosocial interventions and the design and delivery of supportive and palliative care research.

In the past decade, I have led a programme of work about the improvement of supportive care of cancer patients with involuntary weight loss and poor appetite, symptoms of cancer cachexia syndrome. The work is recognised both nationally and internationally for delivering new understandings of cancer cachexia and innovations in supportive care for patients and families affected by the syndrome. For example, I have developed and tested the first psychosocial intervention for patients affected by cancer cachexia syndrome; the Macmillan Approach to Weight and Eating (MAWE), available at http://learnzone.macmillan.org.uk/

I am committed to improving the quality, efficiency and effectiveness of service by using research as a change management tool. I see research as a key facilitator to raise clinical performance. To this end, in my career as an academic researcher (12 years), I have authored over 60 peer reviewed publications and co-edited the Oxford University Press textbook, Nutrition and the Cancer Patient (2010). I now frequently speak at national and international scientific meetings. In December 2013 I delivered an invited presentation during the opening plenary of the 7th Cachexia Conference, Kobe, Japan.

My research leadership role has also led me to serve on committees at local, national and international levels. For example, I was a member of Help the Hospices Food and Nutrition Group 2008-2011, the National Cancer Research Institute, Palliative Care Clinical Studies Group from 2009-2012 and a member of the Palliative Care Congress 2014 Organising Committee and Scientific Committee. I am currently an Independent Member for the Velindre NHS Trust Board (Cardiff University representative), member of the European School of Oncology (ESO) Early Recognition of Malnutrition and Cachexia Taskforce and member of the Scientific Board, Cachexia Hub, Helsinn Healthcare.
I lead the Emotional, supportive and palliative care research group within Cardiff University School of Healthcare Sciences. Members of the group offer doctoral supervision to nurses, allied health professionals and social scientists with an interest in research topics relating to the improvement of health outcomes and support for people affected by chronic and life-limiting conditions in Wales and beyond.


Career Profile

Jane Hopkinson is a cancer, palliative and end of life care researcher and lead for the Emotional, Supportive and Palliative Care Research Group. She trained as a nurse at The Middlesex Hospital London, qualifying in 1984 and then worked clinically in the fields of rehabilitation, cancer and palliative care prior to becoming a full-time researcher in 2001. From 2002-2011, she led the Macmillan Weight and Eating Studies (MWES), University of Southampton; a series of studies concerned with improving health outcomes for cancer patients living with involuntary weight loss and poor appetite.

Jane$acirc;  s research training is broad. Her PhD, concerned with how nurses cope with caring for dying people, was informed by hermeneutic phenomenology. More recently, her Post Doctoral Fellowship work has enabled the development of expertise in clinical trial design and quantitative data analysis. It included the design and delivery of a Phase ll exploratory trial of a psycho-educational intervention to help patients and their family members cope with eating difficulties caused by advanced cancer. This broad methodological and methods base has enabled her to design, deliver and supervise quantitative, qualitative and mixed methods research. She has a particular interest in the methodology and methods of Phase I-II trials of psycho-social interventions and expertise in the design and delivery of palliative care research. The focus of Jane$acirc;  s research is now the development and evaluation of innovative approaches to symptom management and other problems experienced by patients with cancer and chronic illnesses. The emphasis is on improving patient reported health outcomes not only for patients, but also for family carers, when affected by life-limiting conditions.

Awards and Prizes

Macmillan Post Doctoral Fellowship (2008-2011), University of Southampton, UK

Travel award (2008), University of Alberta, Canada

PhD studentship (1998-2000), University of Manchester, UK

Membership and External Activity

Committees (current)

Sept 11 $acirc;   present: Visiting Research Fellow, University of Southampton

Dec 11 - present: Cardiff and Vale Health Board Nutrition and Catering Steering Group

Sept 11 - present: Research Ethics Committee member, School of Healthcare Sciences, Cardiff University.

Aug 2012 $acirc;   present: Independent Member Velindre NHS Trust Board (Cardiff University Rep.)

Chair: Research Risk Review Committee

Chair: Genetically Modified Products Safety Committee

Independent member: Research and Development Committee

Independent member: Trust Board

Membership of academic societies/groups

Dec 2007 $acirc;   present: Member of an international collaboration of researchers investigating psychosocial support for people living with cancer cachexia syndrome

Jun 2007 $acirc;   present: Member of the International Palliative and Family Carer Research Collaboration. Chair: Peter Hudson, Director of the Centre for Palliative Care (St Vincent$acirc;  s Hospital and a Collaborative Centre of The University of Melbourne, Australia)

Mar 2012 $acirc;   present: Lead for the Emotional, supportive and palliative care research group, School of Healthcare Sciences, Cardiff University

Oct 2012 $acirc;   present: Member of the European School of Oncology (ESO) Early Recognition of Malnutrition and Cachexia Taskforce


























I teach on undergraduate and postgraduate programmes about the relevance of research for healthcare improvement and innovation.

Recent research projects

Improving the experience of out-patient cancer treatment for people with comorbid dementia in Wales

This research is funded by Tenovus. The overarching purpose of the project is to develop an understanding of the experience of cancer treatment for people with memory problems and people with dementia and their family members. The focus is on factors that impact this experience both positively and negatively to inform future service improvement.

Macmillan Associate Lecturer: Impact Evaluation

This is a project funded by Macmillan Cancer Support. The overarching purpose is to support the development excellence in cancer nursing education within Wales through ongoing collaboration between the Cardiff University, Macmillan Cancer Support, Senior Macmillan Learning and Development Manager and senior nurses.

Cancer Carer Medicines Management (CCMM): an educational intervention for carer management of pain medication in cancer patients at the end of life.

This project is supported by the Dimbleby Marie Curie Cancer Research Fund. It is work that brings together researchers from the School of Healthcare Sciences, Cardiff University, University of Southampton and University of Leeds. The award is enabling research to develop and evaluate a nurse-led intervention for carers on pain medicines management.   This new education and support package will be called Cancer Carer Medicine Management (CCMM).

Research into the supportive care of patients with cancer cachexia syndrome and their family members

This is an ongoing programme of work with the purpose of developing a family level nurse delivered psycho-educational intervention for families affected by cancer cachexia syndrome. It was initiated with funding from Macmillan Cancer Support.

Development of a module to supplement the EORTC Core instruments for assessment of Health Related Quality of Life in patients with Cancer Cachexia

This research is to develop a measurement tool for assessing quality of life in cancer patients enrolled in trials of interventions intended to treat cachexia. It will supplement the EORTC core instruments for assessment of health related quality of life and is funded by the EORTC Quality of Life Group.

A study of the effectiveness of the Macmillan Approach to Weight Loss and Eating Difficulties

This research tested the acceptability, deliverability and patient perceived effect of a new approach to the management of weight loss and eating difficulties in people with advanced cancer. The project was a component of the Southampton Macmillan Research Unit programme to develop innovations in the supportive care of cancer patients. Report available:


Supporting relatives: an investigation into obstacles and aids to information exchange within families affected by cancer

This is a user-led investigation of the provision of information for patients and others affected by cancer funded by Macmillan Cancer Support. Report available:



I am interested in supervising students in the areas of:

Cancer care

End of life care

Dementia care

I currently supervise:

Fathiyyah Alsomali (Cancer Nurse) The Efficacy of Teaching Program on the Rate of Cord Blood Donation to the National Cord Blood Bank in Saudi Arabia

Jane Mathlin (Radiographer) Exploring the experience of altered taste during radiotherapy for head and neck cancer

Sian Lewis (Dietitian) The experiences of head and neck patients receiving enteral nutrition

Anna Jones (Intensive Care Nurse) A Critical Exploration of the Quality of Life of Adult Home Mechanically Ventilated Patients

Hama Ngandu (Respiratory Nurse) - Experiences of Non-Invasive Ventilation in Older People with Hypercapnic Respiratory Failure

David Evans (Radiographer) - Survivorship experiences of working-age adults previously treated for oropharyngeal cancer. Moving towards a post-treatment self, its hidden impact and an absence of recognition: An interpretative phenomenological analysis

Past projects

Co-supervisor for:

Sarah Fry (Cancer Nurse) - Perceptions of prostate cancer risk in African and Carribean men in South Wales: implications for health policy and supportive care (PhD awarded 2017)

Nicola West (Cancer Nurse) - Being a carrier and living with the BRCA gene mutation: an interpretive phenomenological study of the experiences of women who elect Risk-Reducing bilateral Mastectomy, their husbands and family (PhD awarded 2017)

Sally Wheelwright (Social Scientist) - Development of a psychoeducational intervention for patients with cancer cachexia and their informal carers (PhD awarded 2017)

Nicola Evans (Mental Health Nurse) - To Explore How a Change Agent Initiates Change in an NHS Outpatient Service (PhD awarded 2014)

Jane Winter (Nurse) - Living with locally advanced rectal cancer: An exploration of the everydayness of living with rectal cancer. (PhD awarded 2009)

Caroline Hoffman (Cancer Nurse) - An evaluation study of the effectiveness of a mindfulness meditation based stress reduction (MBSR) programme on stress, coping and well-being in women with breast cancer. (PhD awarded 2009)

Jodie Moffatt (Radiographer) - Factors that influence illness behaviour prior to a diagnosis of lung cancer. (PhD awarded 2007)