Yr Athro Jane Hopkinson
Athro Nyrsio a Gofal Canser Rhyngddisgyblaethol Velindre
- hopkinsonjb@cardiff.ac.uk
- +44 (0)29 206 88562
- Ystafell 13.10, Tŷ Eastgate, Heol Casnewydd, Caerdydd, CF24 0AB
- Ar gael fel goruchwyliwr ôl-raddedig
Trosolwg
I am a Registered General Nurse (The Middlesex Hospital, London) and hold an Honours degree in social science (Open University), Post Graduate Diploma in Clinical Trials (London School of Hygiene and Tropical Medicine and PhD in Nursing Studies (University of Manchester). I have a long standing interest in practice development and research into supportive, palliative and end of life care.
Academic Interests
My research interests and expertise include Phase I-II trials of psychosocial interventions and the design and delivery of supportive and palliative care research.
In the past decade, I have led a programme of work about the improvement of supportive care of cancer patients with involuntary weight loss and poor appetite, symptoms of cancer cachexia syndrome. The work is recognised both nationally and internationally for delivering new understandings of cancer cachexia and innovations in supportive care for patients and families affected by the syndrome. For example, I have developed and tested the first psychosocial intervention for patients affected by cancer cachexia syndrome; the Macmillan Approach to Weight and Eating (MAWE), available at http://learnzone.macmillan.org.uk/
I am committed to improving the quality, efficiency and effectiveness of service by using research as a change management tool. I see research as a key facilitator to raise clinical performance. To this end, in my career as an academic researcher (12 years), I have authored over 60 peer reviewed publications and co-edited the Oxford University Press textbook, Nutrition and the Cancer Patient (2010). I now frequently speak at national and international scientific meetings. In December 2013 I delivered an invited presentation during the opening plenary of the 7th Cachexia Conference, Kobe, Japan.
My research leadership role has also led me to serve on committees at local, national and international levels. For example, I was a member of Help the Hospices Food and Nutrition Group 2008-2011, the National Cancer Research Institute, Palliative Care Clinical Studies Group from 2009-2012 and a member of the Palliative Care Congress 2014 Organising Committee and Scientific Committee. I am currently an Independent Member for the Velindre NHS Trust Board (Cardiff University representative), member of the European School of Oncology (ESO) Early Recognition of Malnutrition and Cachexia Taskforce and member of the Scientific Board, Cachexia Hub, Helsinn Healthcare.
I lead the Emotional, supportive and palliative care research group within Cardiff University School of Healthcare Sciences. Members of the group offer doctoral supervision to nurses, allied health professionals and social scientists with an interest in research topics relating to the improvement of health outcomes and support for people affected by chronic and life-limiting conditions in Wales and beyond.
Bywgraffiad
Career Profile
Jane Hopkinson is a cancer, palliative and end of life care researcher and lead for the Emotional, Supportive and Palliative Care Research Group. She trained as a nurse at The Middlesex Hospital London, qualifying in 1984 and then worked clinically in the fields of rehabilitation, cancer and palliative care prior to becoming a full-time researcher in 2001. From 2002-2011, she led the Macmillan Weight and Eating Studies (MWES), University of Southampton; a series of studies concerned with improving health outcomes for cancer patients living with involuntary weight loss and poor appetite.
Jane$acirc; s research training is broad. Her PhD, concerned with how nurses cope with caring for dying people, was informed by hermeneutic phenomenology. More recently, her Post Doctoral Fellowship work has enabled the development of expertise in clinical trial design and quantitative data analysis. It included the design and delivery of a Phase ll exploratory trial of a psycho-educational intervention to help patients and their family members cope with eating difficulties caused by advanced cancer. This broad methodological and methods base has enabled her to design, deliver and supervise quantitative, qualitative and mixed methods research. She has a particular interest in the methodology and methods of Phase I-II trials of psycho-social interventions and expertise in the design and delivery of palliative care research. The focus of Jane$acirc; s research is now the development and evaluation of innovative approaches to symptom management and other problems experienced by patients with cancer and chronic illnesses. The emphasis is on improving patient reported health outcomes not only for patients, but also for family carers, when affected by life-limiting conditions.
Awards and Prizes
Macmillan Post Doctoral Fellowship (2008-2011), University of Southampton, UK
Travel award (2008), University of Alberta, Canada
PhD studentship (1998-2000), University of Manchester, UK
Membership and External Activity
Committees (current)
Sept 11 $acirc; present: Visiting Research Fellow, University of Southampton
Dec 11 - present: Cardiff and Vale Health Board Nutrition and Catering Steering Group
Sept 11 - present: Research Ethics Committee member, School of Healthcare Sciences, Cardiff University.
Aug 2012 $acirc; present: Independent Member Velindre NHS Trust Board (Cardiff University Rep.)
Chair: Research Risk Review Committee
Chair: Genetically Modified Products Safety Committee
Independent member: Research and Development Committee
Independent member: Trust Board
Membership of academic societies/groups
Dec 2007 $acirc; present: Member of an international collaboration of researchers investigating psychosocial support for people living with cancer cachexia syndrome
Jun 2007 $acirc; present: Member of the International Palliative and Family Carer Research Collaboration. Chair: Peter Hudson, Director of the Centre for Palliative Care (St Vincent$acirc; s Hospital and a Collaborative Centre of The University of Melbourne, Australia)
Mar 2012 $acirc; present: Lead for the Emotional, supportive and palliative care research group, School of Healthcare Sciences, Cardiff University
Oct 2012 $acirc; present: Member of the European School of Oncology (ESO) Early Recognition of Malnutrition and Cachexia Taskforce
Cyhoeddiadau
2023
- Amano, K. et al. 2023. Development and validation of questionnaires for eating‐related distress among advanced cancer patients and families. Journal of Cachexia, Sarcopenia and Muscle 14(1), pp. 310-325. (10.1002/jcsm.13133)
2022
- Ashley, L. et al. 2022. Cancer care for people with dementia: literature overview and recommendations for practice and research. CA: A Cancer Journal for Clinicians (10.3322/caac.21767)
- Amano, K., Hopkinson, J. and Baracos, V. 2022. Psychological symptoms of illness and emotional distress in advanced cancer cachexia. Current Opinion in Clinical Nutrition and Metabolic Care 25(3), pp. 167-172. (10.1097/MCO.0000000000000815)
- Fry, S., Hopkinson, J. and Kelly, D. 2022. “We’re talking about black men here, there’s a difference” Cultural differences in socialised knowledge of prostate cancer risk: a qualitative research study. European Journal of Oncology Nursing 56, article number: 102080. (10.1016/j.ejon.2021.102080)
- Courtier, N., Armes, J., Smith, A., Radley, L. and Hopkinson, J. 2022. Targeted self-management limits fatigue for women undergoing radiotherapy for early breast cancer: results from the ACTIVE randomised feasibility trial. Supportive Care in Cancer 30, pp. 389-400. (10.1007/s00520-021-06360-0)
2021
- Csontos, J. et al. 2021. Cancer memory mate: implementing a healthcare innovation to support the management of cancer treatments and side effects in people with memory problems in South Wales, UK. Presented at: 2021 UKONS Annual Conference, Virtual, 11-13 November 2021.
- Hopkinson, J. B. 2021. The psychosocial components of multimodal interventions offered to people with cancer cachexia: a scoping review. Asia-Pacific Journal of Oncology Nursing 8(5), pp. 450-461. (10.4103/apjon.apjon-219)
- Maunsell, R., Sodergren, S., Hopkinson, J., Shaw, C., Foster, C. and Wheelwright, S. 2021. Nutritional care in colorectal cancer-what is the state of play?. Colorectal Disease (10.1111/codi.15933)
- Hopkinson, J. et al. 2021. Crisis management for people with dementia at home: mixed-methods case study research to identify critical factors for successful home treatment. Health and Social Care in the Community 29(4), pp. 1072-1082. (10.1111/hsc.13141)
- Hopkinson, J. B. et al. 2021. What happens before, during and after crisis for someone with dementia living at home: a systematic review. Dementia 20(2), pp. 570-612. (10.1177/1471301220901634)
- Hopkinson, J., Watts, T., Abdi, A. and Chivers, E. 2021. What is known about oral nutritional care of patients receiving radiotherapy, chemotherapy or chemoradiotherapy for colorectal cancer? A systematic review and narrative synthesis.. NIHR CRD. Available at: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42020178160
2020
- Hopkinson, J., King, A., Courtier, N., Milton, R. and Elias, J. 2020. Potential for identification of memory problems in the cancer clinic to enable improved treatment experience and outcomes: mixed methods case study research. European Journal of Oncology Nursing 48, article number: 101777. (10.1016/j.ejon.2020.101777)
- Hopkinson, J., Kazmi, C., Elias, J., Wheelwright, S., Williams, R. and Russell, A. 2020. Diet and weight management by people with non-metastatic colorectal cancer during chemotherapy: mixed methods research. Colorectal Cancer 9(2), article number: CRC16. (10.2217/crc-2019-0017)
- Fry, S., Kelly, D. and Hopkinson, J. 2020. Using card games to study cultural differences in men’s social talk about prostate cancer. Journal of Advanced Nursing 76(7), pp. 1840-1849. (10.1111/jan.14373)
- Samuriwo, R., Candida, L., Anstey, S., Job, C. and Hopkinson, J. 2020. Nurses' decision-making about cancer patients end of life skin care in Wales: an exploratory mixed method vignette study protocol. BMJ Open 10(7), article number: e034938. (10.1136/bmjopen-2019-034938)
2019
- Amano, K., Baracos, V. and Hopkinson, J. 2019. Integration of palliative, supportive, and nutritional care to alleviate eating-related distress among advanced cancer patients with cachexia and their family members. Critical Reviews in Oncology/Hematology 143, pp. 117-123. (10.1016/j.critrevonc.2019.08.006)
2018
- Hopkinson, J. 2018. Psychosocial support in cancer cachexia syndrome: the evidence for supportedself-management of eating problems during radiotherapy or chemotherapy treatment. Asia-Pacific Journal of Oncology Nursing 5(4), pp. 358-368. (10.4103/apjon.apjon_12_18)
- Courtier, N. et al. 2018. ACTIVE: a randomised feasibility trial of a behavioural intervention to reduce fatigue in women undergoing radiotherapy for early breast cancer: study protocol. Pilot and Feasibility Studies 4, article number: 85. (10.1186/s40814-018-0275-7)
- Samuriwo, R., Henley, J., Anstey, S., Job, C., Williams, D. and Hopkinson, J. 2018. Nurse decision-making about the delivery of skin care to patients with advanced cancer at the end of life: an exploratory qualitative study. Cardiff University.
- Hopkinson, J. 2018. The nourishing role: exploratory qualitative research revealing unmet support needs in family carers of people with advanced cancer and eating problems. Cancer Nursing 41(2), pp. 131-138. (10.1097/NCC.0000000000000474)
- Latter, S. et al. 2018. Supporting carers to manage pain medication in cancer patients at the end of life: a feasibility trial. Palliative Medicine 32(1), pp. 246-256. (10.1177/0269216317715197)
- Samuriwo, R., Henley, J., Anstey, S., Job, C. and Hopkinson, J. 2018. Nurse decision making about the delivery of skin care to patients with advanced cancer at the end of life: a qualitative exploratory study. Presented at: Tissue Viability Society Conference, Newcastle, UK, 2018.
- Samuriwo, R., Henley, J., Anstey, S., Job, C. and Hopkinson, J. 2018. Quality improvement in end of life skin care. Nurse decision making about the delivery of skin care to advanced cancer patients at the end of life: exploratory qualitative research. Presented at: European Wound Management Association Virtual Conference (EWMA 2018), Krakow, Poland, 9-11 May 2018.
- Samuriwo, R., Henley, J., Anstey, S., Job, C. and Hopkinson, J. 2018. Developing a decision making tool for nurses to improve end of life skin care for advanced cancer patients: a qualitative exploratory study. Presented at: 20th Annual Meeting of European Pressure Ulcer Advisory Panel (EPUAP 2018), Rome, Italy, 12-14 September 2018.
2017
- Barker, S., Lynch, M. and Hopkinson, J. 2017. Decision making for people living with dementia by their carers at the end of life: a rapid scoping review. International Journal Palliative Nursing 23(9), pp. 446-456. (10.12968/ijpn.2017.23.9.446)
- Edwards, D., Anstey, S., Kelly, D., Baillie, J. and Hopkinson, J. B. 2017. What is important for student nurses to know about cancer treatment and care: a qualitative study of student nurses’ and stakeholder perspectives. Journal of Clinical Nursing 26(13-14), pp. 2045-2054. (10.1111/jocn.13616)
- Edwards, D., Carrier, J. and Hopkinson, J. 2017. Assistance at mealtimes in hospital settings and rehabilitation units for patients (>65 years) from the perspective of patients, families and healthcare professionals: a mixed methods systematic review. International Journal of Nursing Studies 69, pp. 100-118. (10.1016/j.ijnurstu.2017.01.013)
- Wheelwright, S. J. et al. 2017. Development of the EORTC QLQ-CAX24, a questionnaire for cancer patients with cachexia. Journal of Pain and Symptom Management 53(2), pp. 232-242. (10.1016/j.jpainsymman.2016.09.010)
2016
- Maddocks, M., Hopkinson, J. and Conibear, J. 2016. Practical multimodal care for cancer cachexia. Current Opinion in Supportive and Palliative Care 10(4), pp. 298-305. (10.1097/SPC.0000000000000241)
- Ngandu, H., Gale, N. and Hopkinson, J. 2016. Non-invasive ventilation in older people with acute respiratory failure: review. European Respiratory Review 25(142), pp. 451-471. (10.1183/16000617.0002-2016)
- Hopkinson, J. B., Milton, R., King, A. and Edwards, D. 2016. People with dementia: what is known about their experience of cancer treatment and cancer treatment outcomes? A systematic review. Psycho-Oncology 25(10), pp. 1137 -1146. (10.1002/pon.4185)
- Field, J., Richardson, A., Hopkinson, J. and Fenlon, D. 2016. Nordic walking as an exercise intervention to reduce pain in women with aromatase inhibitor associated arthralgia: a feasibility study. Journal of Pain and Symptom Management 52(4), pp. 548-559. (10.1016/j.jpainsymman.2016.03.010)
- Courtier, N., Milton, R., King, A., Tope, R., Morgan, S. and Hopkinson, J. 2016. Cancer and dementia: an exploratory study of the experience of cancer treatment in people with dementia. Psycho-Oncology 25(9), pp. 1079-1084. (10.1002/pon.4212)
- Latter, S., Hopkinson, J. B., Richardson, A., Hughes, J. A., Lowson, E. and Edwards, D. 2016. How can we help family carers manage pain medicines for patients with advanced cancer? A systematic review of intervention studies. BMJ Supportive and Palliative Care 6(3), pp. 263-275. (10.1136/bmjspcare-2015-000958)
- Edwards, D., Carrier, J. and Hopkinson, J. 2016. Mealtime assistance for older adults in hospital settings and rehabilitation units from the perspective of patients, families and healthcare professionals: a mixed methods systematic review. JBI Database of Systematic Reviews and Implementation Reports 14(9), pp. 261-357. (10.11124/JBISRIR-2016-003100)
- Evans, N. and Hopkinson, J. B. 2016. How action researchers use anxiety to facilitate change in health care. Journal of Clinical Nursing 25(11-12), pp. 1674-1682. (10.1111/jocn.13186)
- Job, C., Anstey, S. and Hopkinson, J. B. 2016. Learning from the experiences of cancer patients and their carers. Cancer Nursing Practice 15(4), pp. 14-20. (10.7748/cnp.15.4.14.s18)
- Edwards, D. J., Anstey, S. V., Kelly, D. M. and Hopkinson, J. B. 2016. An innovation in curriculum content and delivery of cancer education within undergraduate nurse training in the UK. What impact does this have on the knowledge, attitudes and confidence in delivering cancer care?. European Journal of Oncology Nursing 21, pp. 8-16. (10.1016/j.ejon.2015.12.003)
- Preston, N. J. et al. 2016. Strategies designed to help healthcare professionals to recruit participants to research studies. Cochrane Database of Systematic Reviews 2, article number: MR000036. (10.1002/14651858.MR000036.pub2)
- Hopkinson, J. 2016. Food connections: a qualitative exploratory study of weight- and eating-related distress in families affected by advanced cancer. European Journal of Oncology Nursing 20, pp. 87-96. (10.1016/j.ejon.2015.06.002)
- Wheelwright, S., Darlington, A. S., Hopkinson, J. B., Fitzsimmons, D. and Johnson, C. 2016. A systematic review and thematic synthesis of quality of life in the informal carers of cancer patients with cachexia. Palliative Medicine 30(2), pp. 149-160. (10.1177/0269216315588743)
- King, A., Hopkinson, J. B. and Milton, R. 2016. Reflections of a team approach to involving people with dementia in research. International Journal of Palliative Nursing 22(1), pp. 372-377. (10.12968/ijpn.2016.22.1.22)
- Wheelwright, S. J., Darlington, A., Hopkinson, J. B., Fitzsimmons, D., White, A. and Johnson, C. D. 2016. A systematic review to establish health-related quality-of-life domains for intervention targets in cancer cachexia. BMJ Supportive & Palliative Care 6(3), pp. 307-314. (10.1136/bmjspcare-2014-000680)
2015
- Hopkinson, J. B. 2015. The nursing contribution to the nutritional care of people with cancer cachexia. Proceedings of the Nutrition Society 74(4), pp. 413-418. (10.1017/S0029665115002384)
- Foster, C. et al. 2015. You can't say, 'What about me?' I'm not the one with cancer": information and support needs of relatives. Psycho-Oncology 24(6), pp. 705-711. (10.1002/pon.3716)
- Hopkinson, J. B. 2015. Nutritional support of the elderly cancer patient: the role of the nurse. Nutrition 31(4), pp. 598-602. (10.1016/j.nut.2014.12.013)
- Hopkinson, J. B. et al. 2015. Cancer Carers Medicines Management: a study to develop and test an educational intervention for carers of cancer patients approaching end of life at home [Abstract]. Supportive Care in Cancer 23(1), pp. S61. (10.1007/s00520-015-2712-y)
- Hopkinson, J. B. and Richardson, A. 2015. A mixed-methods qualitative research study to develop a complex intervention for weight loss and anorexia in advanced cancer: the Family Approach to Weight and Eating (FAWE). Palliative Medicine 29(2), pp. 164-176. (10.1177/0269216314556924)
- Edwards, D. J., Carrier, J. A. K. and Hopkinson, J. B. 2015. Assistance at mealtimes in hospital settings and rehabilitation units for older adults from the perspective of patients, families and healthcare professionals: a mixed methods systematic review protocol. JBI Database of Systematic Reviews and Implementation Reports 13(11), pp. 17-32. (10.11124/jbisrir-2015-2425)
- Wheelwright, S. J., Hopkinson, J. B., Darlington, A., Fitzsimmons, D. F. and Johnson, C. D. 2015. Identification of intervention targets for a psychoeducational workshop for patients with cancer cachexia and their carers [Abstract]. Journal of Cachexia, Sarcopenia and Muscle 6(4), pp. 471-509. (10.1002/jcsm.12087)
- Samuriwo, R., Anstey, S., Job, C., Coles, B. M., Cleves, A. and Hopkinson, J. B. 2015. The impact of nurse decision making on the pressure ulcer related clinical and quality related outcomes of adult patients in the last six months of life: a systematic review. PROSPERO International Prospective Register of Systematic Reviews, article number: CRD42015026756.
2014
- Hopkinson, J. B. 2014. Challenges to pain medicines management at home: commentary on the Schumacher et al. papers. Journal of Pain and Symptom Management 48(5), pp. 760-761. (10.1016/j.jpainsymman.2014.09.005)
- Aapro, M. et al. 2014. Early recognition of malnutrition and cachexia in the cancer patient: a position paper of a European School of Oncology Task Force. Annals of Oncology 25(8), pp. 1492-1499. (10.1093/annonc/mdu085)
- Latter, S. et al. 2014. Study protocol for a feasibility trial of Cancer Carer Medicines Management (CCMM): an educational intervention for carer management of pain medication in cancer patients at end of life. Working Papers in the Health Sciences 1(8), article number: 3.
- Hopkinson, J. B. 2014. Psychosocial impact of cancer cachexia. Journal of Cachexia, Sarcopenia and Muscle 5(2), pp. 89-94. (10.1007/s13539-014-0142-1)
- Edwards, D. J. and Hopkinson, J. B. 2014. Initiatives for improving the provision of assistance at mealtimes for older adults on hospital wards: a mixed methods systematic review [Poster presentation]. BMJ Supportive & Palliative Care 4, pp. A26-A27. (10.1136/bmjspcare-2014-000654.73.)
- Hopkinson, J. B. et al. 2014. Cancer carers medicines management: a feasibility trial of an educational intervention for managing end of life pain medication. BMJ Supportive & Palliative Care 4(Supp 1), article number: A7. (10.1136/bmjspcare-2014-000654.18)
2013
- Hane, H., Obeholzer, R., Walker, J., Hopkinson, J. B., de Wolf-Linder, S. and Strasser, F. 2013. Psychosocial consequences of cancer cachexia: the development of an item bank. Journal of Pain and Symptom Management 46(6), pp. 795-806. (10.1016/j.jpainsymman.2013.01.008)
- Oberholzer, R., Hopkinson, J. B., Baumann, K., Omlin, A., Kaasa, S., Fearon, K. C. and Strasser, F. 2013. Psychosocial effects of cancer cachexia: A systematic literature search and qualitative analysis. Journal of Pain and Symptom Management 46(1), pp. 77-95. (10.1016/j.jpainsymman.2012.06.020)
- Hopkinson, J. B., Fenlon, D. R. and Foster, C. L. 2013. Outcomes of a nurse-delivered psychosocial intervention for weight- and eating-related distress in family carers of patients with advanced cancer. International Journal of Palliative Nursing 19(3), pp. 116-123.
- Wheelwright, S., Darlington, A., Hopkinson, J. B., Fitzsimmons, D., White, A. and Johnson, C. D. 2013. A systematic review of health-related quality of life instruments in patients with cancer cachexia. Supportive Care in Cancer 21(9), pp. 2625-2636. (10.1007/s00520-013-1881-9)
2012
- Hoffman, C. J., Ersser, S. J. and Hopkinson, J. B. 2012. Mindfulness-based stress reduction in breast cancer: A qualitative analysis. Complementary Therapies in Clinical Practice 18(4), pp. 221-226. (10.1016/j.ctcp.2012.06.008)
- Preston, N. J. et al. 2012. Strategies to increase participant recruitment to research studies by healthcare professionals. The Cochrane Library 2012(9), article number: MR000036. (10.1002/14651858.MR000036)
- Hoffman, C. J., Ersser, S. J., Hopkinson, J. B., Nicholls, P. G., Harrington, J. E. and Thomas, P. W. 2012. Effectiveness of mindfulness-based stress reduction in mood, breast- and endocrine-related quality of life and wellbeing in stages 0 to III breast cancer: a randomized, controlled trial. Journal of Clinical Oncology 30(12), pp. 1335-1342. (10.1200/JCO.2010.34.0331)
- Hoffman, C. J., Ersser, S. J., Hopkinson, J. B., Nicholls, P. G., Harrington, J. E. and Thomas, P. W. 2012. Effectiveness of mindfulness-based stress reduction in mood, breast- and endocrine-related quality of life, and well-being in Stage 0 to III breast cancer: A randomized, controlled trial. Journal of Clinical Oncology 30(12), pp. 1335-1342. (10.1200/JCO.2010.34.0331)
- Hoffman, C., Ersser, S., Hopkinson, J. B., Nicholls, P., Harrington, J. and Thomas, P. 2012. An RCT evaluating of mindfulness-based stress reduction in mood, breast- and endocrine-related quality-of-life and wellbeing in stages 0 to III breast cancer [Abstract]. Psycho-Oncology 21(s2), pp. 1-1. (10.10002/pon.3051)
- Hopkinson, J. B., Brown, J. C., Okamoto, I. and Addington-Hall, J. M. 2012. The effectiveness of patient-family carer (couple) intervention for the management of symptoms and other health-related problems in people affected by cancer: a systematic literature search and narrative review. Journal of Pain and Symptom Management 43(1), pp. 111-142. (10.1016/j.jpainsymman.2011.03.013)
- Hoffman, C., Ersser, S., Hopkinson, J. B., Nicholls, P., Harrington, J. and Thomas, P. 2012. An RCT evaluating of mindfulness-based stress reduction in mood, breast- and endocrine-related quality-of-life and wellbeing in stages 0 to III breast cancer. Presented at: Annual Conference of the British Psychosocial Oncology Society: Cancer Survivorship & Rehabilitation, Leeds, UK, 19-20 January 2012.
2011
- Hopkinson, J. B. and Brown, J. C. 2011. Security hunger: An understanding of cancer cachexia-related distress in families. Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Hopkinson, J. B. and Scott, I. 2011. What do patients eat when living with advanced cancer: Findings from an exploratory trial of the Macmillan Approach to Weight loss and Eating (MAWE). Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Hopkinson, J. B. 2011. The clinical management of the emotional aspects of cancer cachexia. Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Oberholzer, R., Hopkinson, J. B., Baumann, K. and Omlin, A. 2011. A review on psychosocial effects of cancer cachexia. Presented at: 6th Cachexia Conference, Milan, Italy, 8-10 December 2011.
- Hopkinson, J. B., Okamoto, I. and Addington-Hall, J. . M. 2011. What to eat when off treatment and living with involuntary weight loss and cancer: a systematic search and narrative review. Supportive Care in Cancer 19(1), pp. 1-17. (10.1007/s00520-010-0964-0)
- Hopkinson, J. B. and Strasser, F. 2011. Psychosocial aspects of nutritional care of cancer patients. In: van Halteren, H. and Jatoi, A. eds. ESMO Handbook of Nutrition and Cancer. ESMO Handbooks Lugano: European Society for Medical Oncology (ESMO) Press, pp. 73-80.
2010
- Hopkinson, J. B., Fenlon, D. R., Okamoto, I., Wright, D. N. M., Scott, I., Addington-Hall, J. M. and Foster, C. 2010. The deliverability, acceptability, and perceived effect of the Macmillan approach to eeight loss and eating difficulties: a Phase II, cluster-randomized, exploratory trial of a psychosocial intervention for weight- and eating-related distress in people with advanced cancer. Journal of Pain and Symptom Management 40(5), pp. 684-695. (10.1016/j.jpainsymman.2010.02.015)
- Hopkinson, J. B., Okamoto, I. and Addington-Hall, J. 2010. The effect of psychosocial intervention for cancer patient-carer dyads on symptom experience: A systematic review.. Presented at: 6th European Association of Palliative Care (EAPC) Research Conference, Glasgow, UK, 10-12 June 2010.
- Hopkinson, J., Okamoto, I. and Addlington-Hall, J. M. 2010. What is an appropriate diet for people living with cancer and involuntary weight loss: a systematic review [Abstract]. Palliative Medicine 24(2), pp. 215. (10.1177/0269216310363376)
- Hopkinson, J. B., Okamoto, I. and Addington-Hall, J. 2010. What is an appropriate diet for people living with cancer and involuntary weight loss: A systematic review. Presented at: Palliative Care Congress, Bournemouth, UK, 10-12 March 2010.
- Hopkinson, J. B. 2010. The emotional aspects of cancer anorexia. Current Opinion in Supportive and Palliative Care 4(4), pp. 254-258. (10.1097/SPC.0b013e32833ef813)
- Del Fabbro, E. et al. eds. 2010. Nutrition and the cancer patient. Oxford: Oxford University Press.
- Hopkinson, J. B. and Bailey, C. 2010. Nutritional care of older people. In: Del Fabbro, E. et al. eds. Nutrition and the cancer patient. Oxford: Oxford University Press, pp. 471-476.
- Hawkins, C. et al. 2010. The multi-disciplinary approach to nutritional problems in patients with cancer. In: Del Fabbro, E. et al. eds. Nutrition and the cancer patient. Oxford: Oxford University Press, pp. 237-256.
- Hopkinson, J., Okamoto, I. and Addlington-Hall, J. 2010. The effect of psychosocial intervention for cancer patient -carer dyads on symptom experience: a systematic review. Palliative Medicine 24(4), pp. S36., article number: 106. (10.1177/0269216310366390)
2009
- Foster, C. et al. 2009. Supporting relatives: an investigation into obstacles and aids to information exchange within families affected by cancer. Project Report. [Online]. Macmillan Cancer Support. Available at: http://www.southampton.ac.uk/healthsciences/research/projects/supporting_relatives_an_investigation_into_obstacles_and_aids.page
- Foster, C., Wright, D., Hill, H., Hopkinson, J. B. and Roffe, L. 2009. Psychosocial implications of living 5 years or more following a cancer diagnosis: a systematic review of the research evidence. European Journal of Cancer Care 18(3), pp. 223-247. (10.1111/j.1365-2354.2008.01001.x)
- Hopkinson, J. B. et al. 2009. Overcoming obstacles to conducting trials in the context of palliative care: An exploratory phase II cluster randomised trial to investigate the effectiveness of the ‘Macmillan Approach to Weight loss and Eating difficulties’ (MAWE). Presented at: 11th EAPC Congress, Vienna, Austria, 7-10 May 2009. London, GB, Macmillan Cancer Report.
- Hopkinson, J. B. et al. 2009. A feasibility study: a mixed methods exploratory phase II cluster randomised trail to investigate the effectiveness of the 'Macmillan Approach to Weight loss and Eating difficulties'(MAWE).. Presented at: NCRI Cancer Conference, Birmingham, Birmingham, UK., 4-7 October 2009.
2008
- Hopkinson, J. B. 2008. Carers' influence on diets of people with advanced cancer. Nursing Times 104(12), pp. 28-29.
- Hopkinson, J. B., Wright, D., Foster, C. and Dewey, A. 2008. Correspondence. Letter to the editor. Re: Assessment and monitoring of nutritional status in patients with advanced cancer. IJPN 13 (6) 256-265. International Journal of Palliative Nursing 14(2), pp. 100-101.
- Hopkinson, J. B., Wright, D. N. M. and Foster, C. 2008. Management of weight loss and anorexia. Annals of Oncology 19(Supp7), pp. vii289-vii293. (10.1093/annonc/mdn452)
- Hopkinson, J. B., Foster, C., Roff, L. and Wright, D. N. M. 2008. Carer impact on self-management by people with advanced cancer living with changing eating habits [Oral presentation]. Presented at: 5th Research Forum of the European Association for Palliative Care (EAPC), Trondheim, Norway, 28-31 May 2008, Vol. 22. Vol. 1 supp. pp. 417-418., (10.1177/0269216308091582)
- Hopkinson, J. B. 2008. Change in eating habits. In: Corner, J. and Bailey, C. eds. Cancer nursing: care in context. Oxford: Blackwell, pp. 525-532.
- Hopkinson, J. B. 2008. Patients with advanced cancer used 4 self-action strategies to manage eating-related problems. Evidence Based Nursing 11(2), article number: 61. (10.1136/ebn.11.2.61)
2007
- Walsh, B., Roberts, H. and Hopkinson, J. B. 2007. Emergency hospital admissions for ill-defined conditions amongst older people: a review of the literature. International Journal of Older People Nursing 2(4), pp. 270-277. (10.1111/j.1748-3743.2007.00093.x)
- Hopkinson, J. B. 2007. How people with advanced cancer manage changing eating habits. Journal of Advanced Nursing 59(5), pp. 454-462. (10.1111/j.1365-2648.2007.04283.x)
- Corner, J., Wright, D., Hopkinson, J. B., Gunaratnam, Y., McDonald, J. W. and Foster, C. 2007. The research priorities of patients attending UK cancer treatment centres: findings from a modified nominal group study. British Journal of Cancer 96(6), pp. 875-881. (10.1038/sj.bjc.6603662)
- Hopkinson, J. B. 2007. How people with advanced cancer manage changing eating habits. Journal of Advanced Nursing 59(5), pp. 454-462. (10.1111/j.1365-2648.2007.04283.x)
- Hopkinson, J. B. 2007. Focus on solutions: a health professional's guide. Journal of Advanced Nursing 57(3), pp. 353. (10.1111/j.1365-2648.2007.04196.x)
- Hopkinson, J. B. 2007. Qualitative research practice [Book Review]. Journal of Advanced Nursing 60(6), pp. 708. (10.1111/j.1365-2648.2007.04519_9.x)
- Wright, D. N. M., Corner, J. L., Hopkinson, J. B. and Foster, C. L. 2007. The case for user involvement in research: the research priorities of cancer patients. Breast Cancer Research 9(S2), article number: S3. (10.1186/bcr1801)
- Hopkinson, J. 2007. People with advanced cancer and their care givers in conflict over food. Presented at: 2007 International Nursing Research Conference, Dundee, UK, 1 -4 May 2007The 2007 International Nursing Research Conference: Book of Abstracts.. London: Royal College of Nursing pp. 106.
2006
- Wright, D. N., Hopkinson, J. B., Corner, J. L. and Foster, C. L. 2006. How to involve cancer patients at the end of life as co-researchers. Palliative Medicine 20(8), pp. 821-827. (10.1177/0269216306073110)
- Hopkinson, J. B., Wright, D., McDonald, J. and Corner, J. 2006. The Prevalence of Concern About Weight Loss and Change in Eating Habits in People with Advanced Cancer. Journal of Pain and Symptom Management 32(4), pp. 322-331. (10.1016/j.jpainsymman.2006.05.012)
- Hopkinson, J. B., Wright, D. and Corner, J. 2006. Exploring the experience of weight loss in people with advanced cancer. Journal of Advanced Nursing 54(3), pp. 304-312. (10.1111/j.1365-2648.2006.03818.x)
- Corner, J., Hopkinson, J. B. and Roffe, L. 2006. Experience of health changes and reasons for delay in seeking care: a UK study of the months prior to the diagnosis of lung cancer. Social Science & Medicine 62(6), pp. 1381-1391. (10.1016/j.socscimed.2005.08.012)
- Wright, D., Corner, J., Hopkinson, J. B. and Foster, C. 2006. Listening to the views of people affected by cancer about cancer research: an example of participatory research in setting the cancer research agenda. Health Expectations 9(1), pp. 3-12. (10.1111/j.1369-7625.2006.00353.x)
- Foster, C., Hopkinson, J. B., Hill, H. and Wright, D. 2006. Self management and cancer. Proceedings of the British Psychological Society 14(1), pp. 23.
- Hopkinson, J. B. and Corner, J. 2006. Helping Patients with Advanced Cancer Live with Concerns About Eating: A Challenge for Palliative Care Professionals. Journal of Pain and Symptom Management 31(4), pp. 293-305. (10.1016/j.jpainsymman.2005.09.005)
- Hopkinson, J. B. 2006. The complete guide to relieving cancer pain and suffering [Book Review]. Journal of Advanced Nursing 56(3), pp. 339. (10.1111/j.1365-2648.2006.04066.x)
2005
- Hopkinson, J. B., Wright, D. N. M. and Corner, J. L. 2005. Seeking new methodology for palliative care research: challenging assumptions about studying people who are approaching the end of life. Palliative Medicine 19(7), pp. 532-537. (10.1191/0269216305pm1049oa)
- Hopkinson, J. B., Hallett, C. E. and Luker, K. A. 2005. Everyday death: how do nurses cope with caring for dying people in hospital?. International Journal of Nursing Studies 42(2), pp. 125-133. (10.1016/j.ijnurstu.2004.06.004)
- Corner, J., Hopkinson, J. B., Fitzsimmons, D., Barclay, S. and Muers, M. 2005. Is late diagnosis of lung cancer inevitable? Interview study of patients' recollections of symptoms before diagnosis. Thorax 60(4), pp. 314-319. (10.1136/thx.2004.029264)
- Foster, C., Hopkinson, J. B., Hill, H. and Wright, D. 2005. Supporting self management of people affected by cancer: a review of the evidence. Southampton: University of Southampton, Macmillan Research Unit.
- Foster, C., Wright, D., Hill, H. and Hopkinson, J. B. 2005. Psychosocial implications of living long-term with cancer: a systematic review of the research evidence. Southampton: University of Southampton, Macmillan Research Unit.
- Foster, C., Wright, D., Hill, H. and Hopkinson, J. 2005. Psychosocial implications of living long-term with cancer: a systematic review of the research evidence. Project Report. Macmillan Research Unit.
2004
- Hopkinson, J. B. and Amir, Z. 2004. New name, more care. Macmillan Voice 30(6)
2003
- Hopkinson, J. B., Hallett, C. E. and Luker, K. A. 2003. Caring for dying people in hospital. Journal of Advanced Nursing 44(5), pp. 525-533. (10.1046/j.0309-2402.2003.02836.x)
2002
- Hopkinson, J. B. 2002. The hidden benefit: the supportive function of the nursing handover for qualified nurses caring for dying people in hospital. Journal of Clinical Nursing 11(2), pp. 168-175. (10.1046/j.1365-2702.2002.00576.x)
- Hopkinson, J. and Hopkinson, M. 2002. Nursing staff shortages - managing risk at source. Health Care Risk Report, pp. 16-17.
2001
- Hopkinson, J. B. and Hallett, C. E. 2001. Patients’ perceptions of hospice day care: a phenomenological study. International Journal of Nursing Studies 38(1), pp. 117-125. (10.1016/S0020-7489(00)00045-6)
- Hopkinson, J. B. 2001. Facilitating the development of clinical skills in caring for dying people in hospital. Nurse Education Today 21(8), pp. 632-639. (10.1054/nedt.2001.0667)
- Hopkinson, M. and Hopkinson, J. 2001. NHS complaints statistics. Health Care Risk Report 7(6), pp. 16-17.
- Hopkinson, M. and Hopkinson, J. 2001. Risk management in the NHS: adapting risk management techniques for the commercial world. Health Care Risk Report 7(2), pp. 19-20.
- Hopkinson, M. J. and Hopkinson, J. 2001. Adapting risk identification techniques from business. Health Care Risk Report 7(8), pp. 18-19.
- Hopkinson, M. and Hopkinson, J. 2001. Adapting risk treatment techniques from business. Health Care Risk Report 8(1), pp. 16-19.
Addysgu
I teach on undergraduate and postgraduate programmes about the relevance of research for healthcare improvement and innovation.
Recent research projects
Improving the experience of out-patient cancer treatment for people with comorbid dementia in Wales
This research is funded by Tenovus. The overarching purpose of the project is to develop an understanding of the experience of cancer treatment for people with memory problems and people with dementia and their family members. The focus is on factors that impact this experience both positively and negatively to inform future service improvement.
Macmillan Associate Lecturer: Impact Evaluation
This is a project funded by Macmillan Cancer Support. The overarching purpose is to support the development excellence in cancer nursing education within Wales through ongoing collaboration between the Cardiff University, Macmillan Cancer Support, Senior Macmillan Learning and Development Manager and senior nurses.
Cancer Carer Medicines Management (CCMM): an educational intervention for carer management of pain medication in cancer patients at the end of life.
This project is supported by the Dimbleby Marie Curie Cancer Research Fund. It is work that brings together researchers from the School of Healthcare Sciences, Cardiff University, University of Southampton and University of Leeds. The award is enabling research to develop and evaluate a nurse-led intervention for carers on pain medicines management. This new education and support package will be called Cancer Carer Medicine Management (CCMM).
Research into the supportive care of patients with cancer cachexia syndrome and their family members
This is an ongoing programme of work with the purpose of developing a family level nurse delivered psycho-educational intervention for families affected by cancer cachexia syndrome. It was initiated with funding from Macmillan Cancer Support.
This research is to develop a measurement tool for assessing quality of life in cancer patients enrolled in trials of interventions intended to treat cachexia. It will supplement the EORTC core instruments for assessment of health related quality of life and is funded by the EORTC Quality of Life Group.
A study of the effectiveness of the Macmillan Approach to Weight Loss and Eating Difficulties
This research tested the acceptability, deliverability and patient perceived effect of a new approach to the management of weight loss and eating difficulties in people with advanced cancer. The project was a component of the Southampton Macmillan Research Unit programme to develop innovations in the supportive care of cancer patients. Report available:
http://be.macmillan.org.uk/be/p-19096-weighing-up-the-evidence.aspx
This is a user-led investigation of the provision of information for patients and others affected by cancer funded by Macmillan Cancer Support. Report available:
http://www.southampton.ac.uk/msrg/ourresearch/completedprojects/core/supportingrelativesstudy.page
Supervision
I am interested in supervising students in the areas of:
Cancer care
End of life care
Dementia care
I currently supervise:
Fathiyyah Alsomali (Cancer Nurse) The Efficacy of Teaching Program on the Rate of Cord Blood Donation to the National Cord Blood Bank in Saudi Arabia
Jane Mathlin (Radiographer) Exploring the experience of altered taste during radiotherapy for head and neck cancer
Sian Lewis (Dietitian) The experiences of head and neck patients receiving enteral nutrition
Anna Jones (Intensive Care Nurse) A Critical Exploration of the Quality of Life of Adult Home Mechanically Ventilated Patients
Hama Ngandu (Respiratory Nurse) - Experiences of Non-Invasive Ventilation in Older People with Hypercapnic Respiratory Failure
David Evans (Radiographer) - Survivorship experiences of working-age adults previously treated for oropharyngeal cancer. Moving towards a post-treatment self, its hidden impact and an absence of recognition: An interpretative phenomenological analysis
Past projects
Co-supervisor for:
Sarah Fry (Cancer Nurse) - Perceptions of prostate cancer risk in African and Carribean men in South Wales: implications for health policy and supportive care (PhD awarded 2017)
Nicola West (Cancer Nurse) - Being a carrier and living with the BRCA gene mutation: an interpretive phenomenological study of the experiences of women who elect Risk-Reducing bilateral Mastectomy, their husbands and family (PhD awarded 2017)
Sally Wheelwright (Social Scientist) - Development of a psychoeducational intervention for patients with cancer cachexia and their informal carers (PhD awarded 2017)
Nicola Evans (Mental Health Nurse) - To Explore How a Change Agent Initiates Change in an NHS Outpatient Service (PhD awarded 2014)
Jane Winter (Nurse) - Living with locally advanced rectal cancer: An exploration of the everydayness of living with rectal cancer. (PhD awarded 2009)
Caroline Hoffman (Cancer Nurse) - An evaluation study of the effectiveness of a mindfulness meditation based stress reduction (MBSR) programme on stress, coping and well-being in women with breast cancer. (PhD awarded 2009)
Jodie Moffatt (Radiographer) - Factors that influence illness behaviour prior to a diagnosis of lung cancer. (PhD awarded 2007)