Emotional, Supportive and Palliative Care
The Emotional, Supportive and Palliative Care Research Group is a community of researchers, clinicians, educators and students, who work together to improve the health and well-being of people affected by chronic and life-limiting conditions in Wales and beyond.
We conduct research into issues that affect both patients and their family members. Our research has a particular focus on using mixed-methods to understand issues, then develop and evaluate innovations in nursing care and allied healthcare professional practice.We work collaboratively locally, nationally and internationally within multidisciplinary teams to optimise our impact on healthcare policy and practice.
Our expertise in emotional, supportive and palliative careis across the lifespan from childhood to old age. Our interests include; the support of carers/families of patients, for example developing education for carers in pain medicines management; and the information needs of people with a genetic predisposition to chronic disease, work which informs the education of genetic counsellors across the UK.
- Our scope of activity is growing. We are particularly interested in continuing to expand our work in the following areas:
- Exploration and understanding of the patient-family carer dynamic and its implications for i) health outcomes in patient and carer and ii) clinical practice- to develop innovations that support patients and their families to self-manage health problems
- Developing and testing innovations in patient care, particularly in older people with chronic conditions and co-morbidities to improve care safety, quality and compassion
- Investigating the psychosocial aspects of cachexia (wasting syndrome) in cancer and non-cancer patients
- Improving the nutritional care of cancer patients and their families
As an active and thriving community of scholars we frequently speak about our work at clinical and scientific meetings and draw on our expertise when invited to offer advice, for example, to respond collectively to Welsh government consultations.