Take part in research

A researcher conducting an interview.

By taking part in research, you can help make a better future for people affected by mental health problems. 

We are looking for volunteers to help us with a range of research projects.

We need volunteers with young onset Alzheimer's disease (sometimes referred to as early onset) to help with our research. This is defined as those who began to experience their first symptoms of Alzheimer's disease before the age of 65. Even if you are over 65 now you are still able to help if you first had symptoms before age 65.

If you choose to take part, one or two members of our research team will visit you at your home at a convenient time for you. The research visit will involve:

  • An informal interview with you which will include a memory test
  • An informal interview with a relative or friend of your choice
  • Donation of a blood sample

We would also like to contact you in the future about follow up visits or other research projects. Participation in this project is entirely voluntary. All information will be treated as strictly confidential and you are free to withdraw from the research at any stage.

For more information, or to participate, please contact Nicola Denning on +44 (0)29 2068 8042 or e-mail ADResearch@Cardiff.ac.uk.

We are looking for families with one or more children aged 6 years or older who have a Copy Number Variant to help with the ECHO study

We are particularly interested in hearing from people with the following CNVs/genetic conditions. If you are unsure whether your child has one of these conditions, ask your GP: 

  • 1q21.1 deletion and duplication
  • 2p16.3 exonic deletion
  • 3q29 deletion and duplication
  • 7q11.23 duplication
  • 9q34.3 deletion (Kleefstra Syndrome)
  • 11q14.1 deletion
  • 15q11.2 deletion and duplication
  • 15q11-13 duplication
  • 15q13.3 deletion and duplication
  • 16p11.2 deletion and duplication
  • 16p13.11 duplication
  • 17q12 deletion and duplication
  • 22q11.2 deletion (also known as VCFS or DiGeorge syndrome)
  • 22q11.2 duplication

If your family agrees to help the ECHO Study with our CNV research, two of our trained researchers will visit you in your own home at a time that suits you. Or, if you prefer, you can travel to Cardiff to visit us and we will refund you for your travel costs.

Children

The research involves both parents and children taking part in interviews with our team, which will help us to better understand the child's experiences. There will also be some special puzzles for children to complete so we can see how they think and learn. 

If there is a sibling not affected by a CNV who is willing to take part we will ask them similar questions and to do the same puzzles. This allows us to compare the development of children with a CNV to that of children without a CNV.

Adults

If you are an adult and would like to take part, we will interview you and/or your carer and ask to complete the same puzzles. 

As this is a genetic study, we also ask that you let us take a small blood sample from you and/or your children. For those who prefer not to give a blood sample, we can take a saliva sample instead. We extract the genetic material (DNA) from these samples in our laboratory, and this is then used to better understand how CNVs influence development and behaviour.

Participation in this project is entirely voluntary. All information will be treated as strictly confidential and you are free to withdraw from the research at any stage. If you participate in full you and any of your children that take part will receive a small gift to say thank you for helping us. 

If you would like to take part or find out more about the study, please contact echo@cardiff.ac.uk or phone +44 (0)29 2068 8354.

We are looking for thousands of volunteers to help with our research. Taking part involves a short interview, completing some questionnaires and giving a blood sample.

Anybody can take part, whether they have experience of mental health problems or not, although we are particularly interested in speaking to people with the following conditions:

  • attention deficit hyperactivity disorder (ADHD)
  • autism spectrum disorder
  • bipolar disorder
  • depression
  • perinatal mood disorders
  • post traumatic stress disorder (PTSD)
  • schizophrenia and psychosis

If you'd like to help, contact info@ncmh.info or +44 (0)29 2068 8401. You can find more information about this project on ncmh.info

Helping with our schizophrenia research takes less than two hours. It involves some memory and concentration tasks, an interview and a questionnaire. We will also take a small blood sample. 

Volunteers will receive £10 for their time and we can reimburse reasonable travel expenses.

If you'd like to help, contact us at psychosisresearch@cardiff.ac.uk or visit the schizophrenia research page to find out more.