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Vegetative and minimally conscious states: Creating a web resource for families of severely brain injured patients

Award Holder: Professor Jenny Kitzinger in collaboration with Dr Sue Ziebland (Oxford University) and Prof Celia Kitzinger (University of York)

Award Date: February 2013

Funder: ESRC Knowledge Exchange Award, and DIPEx charity

Increasing numbers of people are now surviving after severe brain injuries which leave them with chronic disorders of consciousness, i.e. in ‘vegetative’ or ‘minimally conscious’ states.

Their families face many challenges including: complex diagnostic and prognostic information, uncertainty about the future, difficult treatment decisions, and profound moral and emotional dilemmas. This initiative builds on (and will extend) our existing data base of in-depth research interviews with families of brain-injured patients in order to create support and information tools.

We are filming interviews, extracts from which will be available on the publicly available web-based resource: HealthTalkOnline, five of which are below.

RCP guidelines on prolonged disorders of consciousness - a reaction from a family member from Jenny Kitzinger on Vimeo.

This work is part of a broader project addressing serious brain injury conducted by the Cardiff-York Chronic Disorders of Consciousness Research Centre.

Visit the Chronic Disorders of Consciousness Research Centre