Chronic Disorders of Consciousness Research Centre
Recent Publications and Outputs
- Hall, A (in press) 'Representing chronic disorders of consciousness: voice in Isabel Allende's Paula', Literature and Medicine.
- Kitzinger, J (in press) 'Media representation of science and health: the case of coma' in Miller, T (in press) The Routledge Companion to Global Popular Culture, Routledge, London.
- Kitzinger, C and Kizinger J (in press, 2014) 'Grief, anger and despair in relatives of severely brain injured patients: responding without pathologising', Editorial. Clinical Rehabilitation
- Kitzinger, C and Kizinger J (in press, 2014) 'This inbetween' - how families talk about death in relation to severe brain injury and disorders of consciousness', Van Brussels, L and Carpentier, N (eds) The Social Construction of Death: interdisciplinary perspectives. Palgrave
- Kitzinger, J and Samuel, G (2014) "Context, Conspirary, Psuedonyms and Self-Report data: discussion of reporting consciousness in coma", JOMEC Journal: Journalism, Media and Cultural Studies
- Holland, S.; Kitzinger C. and Kitzinger J. 2014 "Death, treatment decisions and the permanent vegetative state: evidence from families and experts" Medicine, Health Care and Philosophy DOI: 10.1007/s11019-013-9540-y
- Kitzinger, C and Kitzinger J 2014 "Withdrawing artificial nutrition and hydration from minimally conscious and vegetative patients: family perspectives" Journal of Medical Ethics doi:10.1136/medethics-2013-101799
- Kitzinger, C and Kitzinger, J 2013 Evidence submitted to: House of Lords Select Committee on the Mental Capacity Act 2005
- Halliday, S., Kitzinger, C & Kitzinger, J. 2014. Law in everyday life and death: A socio-legal study of chronic disorders of consciousness, Legal Studies DOI: 10.1111/lest.12042
- Samuel, G. & Kitzinger, J. 2013. Reporting consciousness in coma: Media framing of neuro-scientific research, hope, and the response of families with relatives in vegetative and minimally conscious states, JOMEC Journal: Journalism, Media and Cultural Studies
- Turner-Stokes, L., Kitzinger, J., Gill-Thwaites, H., Playford, E.D., Wade, D., Allanson, J., Pickard, J. 2012. fMRI for vegetative and minimally conscious states, British Medical Journal 2012;345:e8045 doi: 10.1136/bmj.e8045
- Kitzinger, J and Kitzinger, C. 2012. The 'window of opportunity' for death after severe brain injury: Family experiences. Sociology of Health and Illness doi: 10.1111/1467-9566.12020.
- Latchem, J and Kitzinger, J (2012) 'What is important to residents with neurological conditions and their relatives in rehabilitation and long-term care centres?', Research Report, Cardiff University
See also powerpoint presentation for the Wellcome Trust funded symposium: "Coma, Consciousness and Serious Brain Injury".
Blog Commentary on Legal Cases
Kitzinger and Kitzinger: U.K.’s Landmark Case on Withholding Treatment Affirms the Importance of Patients’ Values Bioethics and the Law
Executive Summaries and Resources for Professionals and for Families
Booklet: 'Serious medical decisions regarding people in vegetative or minimally conscious states: the role of family and friends' - View a short YouTube introduction to the booklet
Executive summary of 'Reporting consciousness in coma: media framing of neuro-scientific research'.
Executive summary of 'The "window of opportunity" for death after severe brain injury...'